My pain is real

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New Member

Date Joined Sep 2008
Total Posts : 2
   Posted 9/8/2008 2:38 AM (GMT -6)   
I am a newbie.
I have a herniated disk, L-4 in my lower spine with bone spurs, rheumatoid arthritis and a spinal cyst. Because I have a poencephalus tumor in my brain (filled with spinal fluid) spinal blocks and steroids are not an option for me. I am in so much pain when I wake up in the morning I can barely take the the lortab that makes standing up bearable. Actually, I have to take two in order to funtion. I asked my doctor to up my doage and he yelled at me, theatened to expel me from the clinic (I cried for 30 minutes) before he relented and told me to shut up. I have been on this dose for 6 years, and without it, I couldn't stand the pain, I couldn't live any sort of life or work part time.
It took me years to find a doctor to help me, and still I am made to feel like a criminal because I hurt. By the way, surgery will not relieve all of my pain at this time, it is a stop gap measure at best, if at all. My neuro-surgeon said my results would be minimal at best, and I would eventually require another operation. I want to wait as long as possible, and I will have to because the state has temporarily suspended my insurance. I guess I wanted to share with people who might be in the same boat. I have seen some of your stories, and I feel close to those here. I don't know if anyone can help me, but if you read this, thank-you for listening :)

Pamela Neckpain
Veteran Member

Date Joined May 2008
Total Posts : 1821
   Posted 9/8/2008 4:43 AM (GMT -6)   
((((((((((((Jord Mau)))))))))))

We're with you.
Pamela Neckpain (My eyes are crossing. Must go to my bed)

Elite Member

Date Joined Apr 2004
Total Posts : 23551
   Posted 9/8/2008 7:20 AM (GMT -6)   
Oh my goodness!! You mean you actually had a doctor like that??? That just burns me up ya know? Doctors are there to help us not to make us feel like sniveling pests. I sincerely hope you don't see that doctor anymore do you? I don't rely on narcotic pain meds (because I can't take them) but I have been reading other peoples stories on here. I makes my heart bleed to know what y'all have to go thru in order to just live and function at a semi normal basis.
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Allegra~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis(?)~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3rd epidural injection 9/4, Neurontin and Skelaxin
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Regular Member

Date Joined Aug 2008
Total Posts : 320
   Posted 9/8/2008 9:40 AM (GMT -6)   
Jord Mau, GET ANOTHER DOCTOR! He has no right, nor reason to treat you so badly. My pain clinic would never do that. They want me to call if the pain beocmes to much. I odn't, but they want me to. This treatment is intolerable. I would find another dr and report him!

I have many of the same issues as you, with the exception of the brain tumor. I have an SI cyst and several bulging discs, stenosis, dengenerating facet joints, bone spurs, OA, fibromyalgia, etc. I know how intense the pain can get. I am on some heavy duty stuff and I only get the edge taken off the pain, so I can function at least. Please. Get a different dr. You DO NOT deserve to be treated so badly.
150mg Azathioprine, Lomotil, Iron, Nexium 2/day, Fentanyl patch, Oxycodone, Baclofin
Crohn's, Fibromyalgia, Several bulging discs, Bone spurs, Osteoarthritis, Osteopenia, Reflux, Stenosis, Strictures, Dengenerating facet joints
2 resections
When I am weak, then am I strong

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