Posted 9/19/2008 4:27 PM (GMT -7)
Hello all I havent been on much this week.
I went to the pain man doc on Monday. This was the first time that I really thought I had his full attention while talking with me and that he wasnt in a rush to get out of the room.
We dicussed all the injections that I have gotten up to day and my reaction to them. He didnt even know that I had such a bad reaction to the first one and it was never but in my notes! So beware to make sure all your records reflect what you have been telling the doctor.
He asked me to explain in detail my reaction to each shot and the results or non results or any things that made things worse for me. He aslo really looked at my back and asked me to discibe the pain in detail where it was how it felt exc...So I did and ended up crying like a baby out of frustration. He even gave me a hug and told me he was going to do what ever was in his power to help me.
Also I asked him how many injections you can get within a 3 month period because I have been told 3 and have know many that have gotten 4. He told me that you can have upto 4 every 2 weeks then it has to be every 2 months from there. We dicussed weather or not for me to get the 3rd shot as the first made me worse which really puzzled him. The 2nd didnt make me worse but I only had about 3 days where I felt that the pain wasnt as bad as it had been then pain was back to statis qoe. So he dicided that we will try the 3rd injection but in a different place.
I also asked if this shot didnt work what was the next option from here. He said that was hard to say and that would depend on my reaction to the 3rd shot. grrrr back to waiting the 2 weeks again.
He also explained to me that an mri is up for interpution to the reader and the doctor and its like taking a pic of ones back but using a magnifying glass to look at one spot...so in exssence it really doesnt see the whole picture. Which didnt help me much.
He also prescribed me ultram to take with the loritab at night for pain mangement. Hasnt made much of a difference! grrr another frusteration..going on 4 months now of not getting more than about 3 to 4 hrs a night. Its really waring me down. big time!!!
So, I havent been doing well at all with this injection. Have been in so much pain sence Monday. Last night was in so much pain that I didnt sleep at all and I had to go into work this morn. Went into the office and left an hour later cause pain was so bad...sat in my car and cried for about 20 min and then drove home and took a pain pill and went to bed..woke up still in a great amount of pain. I dont understand why 2 out of the 3 injection have hurt me so bad. I know that you can experence pain for 2 to 3 days after the injection but has anyone else had pain for a week to 2 after injections?
At this point I feel like Im ready to loose my mind. Im tired, worn out and in constant pain. Im miserable all the time and my house is so full of tentions. The kids are acting up prob feeding off me but I dont know what to do about that either. How do you have patience with kids when you dont have anything left to give any body and it requires all of you just to do what you have to do let alone diggin deep for anything more.
Im loosing weight sence my accident because I dont have an attipite at all. Not to mention that I still cant stand for more than about 10 to 20 mins without being in so much pain that I feel like my back is broke. I cant walk for more than 30 mins without the same thing happening. Then when I get home it just seems to get worse and God the nights are so unbarable at times because of the pain. I just dont know what to do any more.
Im trying to follow what the docs are telling me to do, but I just dont feel like im getting anywere with any one. I know one thing for sure though, if I dont have any relife from this injection and I go back to pain man doc and he tells me he wants to do another one I will be looking for a new doc to see, I just cant take this any more. No one and I mean No one should have to suffer like this! I cant even get any pain management other than loritab and ultarm and I dont even ask for many scribts because I dont take mine durning the day unless the pain is really bad. Mybe I should just be eating me pills left right and center and then they would give me something else or at least try something else. God I dont even know any more. Im just floored how the system works and I dont understand it.
Well anyways just wanted to vent a bit and give you guys an update and whats been going on this week.