PaLady & Chartreux -- Thanks for the replies & support.
Unfortunately eye problems are not new to me. But the chronic pain is due to an eye injury.
I saw my eye doctor up to several times a week for months after the injury. I did a lot of damage deep within the orbit which also worsened some of my muscle problems which resulted in another surgery (as I have had muscle surgery in the past). The muscle problem was resolved and the visible damage healed, but I fought a very long battle with inflammation within my eye, which finally cleared up about
6 mo after the injury. However the pain from the initial injury never went away. I don't have a diagnosis which is set in stone, but we think that there is still a lot of unresolved inflammation and scar tissue deep behind the eye (and possibly in the nerves) which is reeking havoc with my nerves. There is definitely still something going on back there, as besides the pain, there is still some swelling above and underneath my eye, as well as vision problems which suggest nerve involvement rather than just being from blunt trauma. However, this type of condition is very rare and very hard to treat as it is unresponsive to just about
everything. I don't have a specific name of a condition because we still have no idea what nerves are involved.
My eye doctor is a muscle specialist himself, and he has done everything he can, he is just as frustrated as I am (or as frustrated as you can be without living with the problem), As far as I know there isn't anyone who specializes in my condition because it is so rare. I have been to several different neuro-opthamologists, including one at a big university hospital. That one didn't believe me and treated me horribly and the other didn't have much to say. The problem is the process is so deep behind the eye that you can't see much wrong when you look at the eye itself (it took my eye doctor two exams before he found the damage, and once he found it he said that it was one of the worst injuries he ever had seen). No one really knows if and when this will ever resolve.
I've been seeing a pain management doc since the spring, but I haven't gotten much help from him yet. I just had the first nerve block in a series of 3 done yesterday, but I haven't gotten any relief - which is horribly disappointing since I had the same block done 3 weeks ago and got partial relief for a couple of days. In terms of school, I'm doing everything I can to help me through. I've been working with the administration since the injury & they enlarge my books and/or get them on tape when they can, but unfortunately I'm a science major, and so almost all my text books are impossible to get on tape & can't be enlarged because they are too big. I need to talk to the admin again to see if there is anything else that can be done.
I'm trying my best to hang in there and not give up, but I'm afraid that my best just isn't good enough.
Post Edited (skeye) : 9/26/2008 4:37:56 PM (GMT-6)