Thank you all for the replies.
PaLady: I also questioned the pain issue. I have, of course, done research on rsd and have read the stories of the pain associated with rsd. I sympathize with anyone dealing with this. The dr.'s I mentioned all told me that while somewhat rare, painless rsd does exist. Apparently, the same nerve malfunction that causes the swelling and color changes is similar to the malfunction that causes pain. I'm told that I am fortunate that the pain nerves are not, for whatever reason, firing. However, they don't know if I will eventually be in pain, get better, or stay the same. (I'm not totally sold yet. The older I get, the more skeptical I become with the medical profession.) Nor do I know if the dr.'s I'm seeing are experienced with rsd.
I dropped the pain management dr. when he suggested pain meds. The reason he suggested pain meds was because that's what they usually do for rsd patients! That is why I'm now seeing a neurologist.
I'm wondering if anyone out there with rsd had delayed pain reaction. After reading about
rsd, I'm concerned that my painless rsd may eventually become outright rsd. If so, is there anything I can do to help prevent this from occuring?
One other thing worth mentioning. I have began having what I assume are migraine headaches. I'm 43 and never had one till a few weeks ago. They are severe headaches, usually followed by naseau (forgive the spelling). Ever heard of a link with rsd and headaches?
Once again, thank you all for your replies. I truly feel for those of you with chronic pain. I wish I could say or do something to help.
Diagnosed at 41 by routine blood test
PSA at diagnosis: 5.1
Pre-op Gleason: 3+4=7
Post-op Gleason: 6 (different labs?)
No luck finding local experience with DaVinci
Scheduled RP at Vanderbilt: 8/06
Insurance trouble, rescheduled at Centennial Hospital, Nashville
Prostate removed 9/06
Robotic, nerves spared, no positive margins
PSA since RP: good (less than .05)
Currently suffer ED