Hi nascar and welcome!!
I am so sorry to hear about
your daughter's pain.As a parent and grandparent I know the agony we feel when our 'babies' are hurting.
One thing you may want to look into is fibromyalgia. Although there are distinct differences between the two they are very similar to the untrained clinician. I have had fibromyalgia for many years and the pain is debilitating at times. With MPS it can be also but it radiates from different areas. Here's a great link to an article in our library. Also do a search on MPS and Fibromyalgia and see if anything looks familiar.
Keep us posted and good luck,
Co-Mod Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other
The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)
Post Edited (Chutz) : 10/21/2008 8:46:26 PM (GMT-6)