I read your posts and saw myself in some of your words.the "why me's" and I know family is tired of me being "sick and tired". BUT thanks to finding this Forum, I see I am not alone and I see I can relate to all of you and you can relate to my pain as well. I will try to see that there is always someone worse off than me. I kept asking myself "How much pain is God going to give me?" and why I couldn't find relief (pain meds)without feeling guilty, or I felt like a hypochondriac. (sp) I felt uncomfortable yesterday asking the Rheumatoligist for pain meds, but believe it or not HE understood, and said "No one should be in this much pain" and prescribed the vicadin. My qaulity of life is such, that it is better using the pain meds to control pain, than to be so miserable I want to kill myself. So if people don't understand, that don't have our pain, so be it, I would not wish this pain on even my worst enemy.
I want to know how, or which doc I approach about the pump? and who prescribes the anxiety meds? the Rheumy? I can not take Oxycontin (I get dillusional), and have such a high tolerence to most pain meds as well. Dilaidid worked great for me in the hospital. but who will prescribe that out of the hospital as well?
I too have a lot of nerve damage and have such a burning sensation on top of my feet. my hands and arms fall asleep alot too. I really never even mentioned it to the Dr. as I already had so many other complaints, aches and pains.I was embarrassed to "gripe" about something else. God I am glad to know I am not alone with my pain. I can't tell you how good it is to be able to speak to people who UNDERSTAND!
Thanks for all the support you give everyone here!