interstital cystitus/ painful bladder

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kandivi
New Member


Date Joined Oct 2008
Total Posts : 8
   Posted 11/3/2008 5:39 AM (GMT -7)   
I suffer from interstital cystitus/painful bladder syndrome. I don't know what causes it or how to get it under control. Last year it was so bad that I had to run to the toilet virtually every minute so much so that I became dehydrated and had to be on a drip for 4 days. I also had to have the hydrodystention under general anaethestic. This I feel helped with some of the pain. Unfortuanately I had an allergic reation to the cystitat.
 
I am concerned because although my symtoms did eventually go away they are now coming back.

kara487
Veteran Member


Date Joined Mar 2008
Total Posts : 637
   Posted 11/3/2008 7:10 AM (GMT -7)   
Im sorry you are having a hard time with Ic . I also suffer from IC and going to the bathroom alot lately and been having accident before going to the toilet. so I can sympathise with you. If you ever need to talk you can email me at kara487@hotmail.com.
Lortab,ambien,elavil,reglan , neurontin,zyrtec and soma.
 
spinal conditions: Scolosis,herniated discs,spinal blockage,Spinal stenosis,bursitis ,Fibro,and arthritis


kandivi
New Member


Date Joined Oct 2008
Total Posts : 8
   Posted 11/4/2008 3:26 AM (GMT -7)   
Thank you very much for your kind message. Heve you managed to get much help for this condition? I saw the consultant last year but she told me there is only four forms of treatment for this condition. 1. general anaethestic and hydrodistention 2. cystistat 3. amytriptillan 4 removal of the bladder. The first one I feel is quite extreme and difficult to get an appointment for. I can't do the bladder instillation as I had an allergic reaction to this. The amytriptillan is an anti depressant and because I have IBS and GORD I can't tolerate this drug. Furthermore the side affects of this drug are so bad that I would have difficulty doing my job if I took it. The last option is abviously not really an option. Is there anything that can be done for the pain because I find it difficult to concentrate with this continuous pain which does not get relieved when you go to the toilet. I was really bad with this for about 7 months last year until the pain finally went away. How are you managing this condition?

kara487
Veteran Member


Date Joined Mar 2008
Total Posts : 637
   Posted 11/4/2008 4:08 AM (GMT -7)   
I have an interstim that manages my condition it is pacemaker in my sacral area that helps control how many times I go to the bathroom. In the past I used urised for the burning pain and bladder spasms. I wish you luck. You can email me anytime if you need support.
Lortab,ambien,elavil,reglan , neurontin,zyrtec and soma.
 
spinal conditions: Scolosis,herniated discs,spinal blockage,Spinal stenosis,bursitis ,Fibro,and arthritis

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