Posted 11/7/2008 12:23 AM (GMT -7)
Hey Pamela (and others),
Insomnia sets in as usual. Have an appt on Mon w/ my pain doc. Need to talk to him about trying something again for sleep. I say that, but don't know what more I'd try....
Yes, my heart doc wants me to get the pump; thinks will lower my blood pressure (I'm at a 150/110 at all times, more when stressed, and I'm on three types of heart meds). Obviously, I'm doing damage to my heart for the long run (I'm 35).
Boys are 13 down to almost 5. Was a healthy, active person until last pregnancy. Got sick 10 weeks into the pregnancy; that was five years ago. My help consists of friends and family (mostly mom/mother-in-law). My husband's helps a lot when he's home, but he works a lot...living in CA, with six kids, the economy as it is - there's just not a choice right now. He's taken a lot of time off in the last five years...
I'm not at the point where I need the wheelchair full-time; but I can't hardly walk through a store, or go virtuallyl anywhere... So, it would be to just get out in the world again, to some extent.
It took almost 3 1/2 years to figure everything out w/ me. But the general consesus is that my immune-system got virtually destroyed due to virus after virus after virus (I had mono at 16, a severe case of chicken pox at 17, etc); at 19, I got the Hep B Vaccine in nursing school - I had an extremely bad reaction to it that they now think contributed to what I have now. Combine all of that to what having six kids does to your body - and here I am. Dysautonomia is basically a disorder of the autonomic nervous system. The ANS controls just about every function of your body - heart rate, temperature, breathing and so forth. There's no cure for what I have, and my doctors think it will probably get worse for me, due to the pattern over the last five years. Yes, I'm on a couple of great support sites for that.
But, as we all know, when you have constant pain - that's all you can think about . So, despite my other health issues, trying to get a handle on my pain issues is at the top of my list.
Thanks for all the nice words. I'm glad you are here, too; and I'm happy this board exists. I've learned a lot. Sorry you are dealing w/ depression - believe me, I understand. It's especially hard to be around healthy, functioning people. In fact, the holidays are a very tough time of year for me. But that's for another time....
Diagnosed with: POTS/dysautonomia; Fibromyalgia; Severe Hypertension; Hypothyroidism; Adrenal Gland Disorder; Chronic Pain - severe carpal tunnel syndrome, migraines, severe back problems, widespread muscle/joint pain....as well as depression/anxiety.
Current Meds: 480mg MS Contin, 90mg MSIR, Soma, Effexor and MANY other meds (heart, thyroid, etc)
Past Meds: EVERYTHING. Fentanyl patches, Actiq (which caused $$$ in dental work), Fentora, Oxycontin, Oxycodone, Kadian, Avinza, Dilaudid and on the list goes.
Waiting On: Intrathecal Drug Pump Implantation (Dilaudid/Baclofen combo)