Kara487, thanks for much for asking. I feel like I'm losing my brain, from the insomnia. Didn't see my regular PM doc on Monday (saw one of the many "interns" that my doc trains - I think they use me as a guinea pig because I do have so many issues). The guy was arrogant and did not like that I came in, knowing what I needed, etc. Oh well, don't have time to concern myself with that junk. I got what I needed and went on my way.
That being said...I'm going to wait until next month to talk w/ my reg Doc more re: the sleep issues - if I make it 'til then. I think the last med you mentioned was the Restoril - and yes, I've been on that, too. That was the last med I tried.
What happens is I'm dead to the world from noon through about 9pm. Then, come 9pm - I get the kids to bed and watch TV/read a book/try to rest/whatever - and I literally get a second wind. My body is soooo tired still, but my mind starts going. So, I watch more TV or get on the computer. Before I know it, hours have passed and it is 1 or 2am. IF I just get in bed and lie there, my mind races, etc. The pain amplifies the situation, too. If I'm doing "something" - I don't think about it so much. But if I'm just lying there - it's all-consuming. So, I'm getting to sleep around 2-ish and having to get up around 6-ish. And that's on the nights I actually sleep; there are nights when I don't sleep at all.
I can't take baths due to my heart issues (increases my heart rate); I have a comfortable bedroom; I've tried all that type of thing. I do have a cyst on my pineal gland in my brain; oddly enough, this area of the brain controls sleep rhythms. I don't know. But I think decreasing my pain and finding some med that works is going to be the only thing that returns my sleep to a regular pattern.
I was thinking of asking my doc for a low-level benzo for sleep. I won't take Xananx, only Ativan in a crisis situation; maybe Valium or Klonopin would work, not every night, but just for the nights where I've been days w/out sleep? I don't know; what do you think???
Hope you are have a LPD, and thanks for reading my novel here --Tina