Complex pain, Not just one thing works for all of it

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New Member

Date Joined Nov 2008
Total Posts : 3
   Posted 11/13/2008 1:31 PM (GMT -6)   
I'm a noob here, just trying to find some ideas or people with similar experiences. Ok, here goes...

I get 4 distinct kinds of pain and one type of pain killer doesn't cover them all. I'll try not to make this confusing.

1. migraines. They are relatively mild compared to other people. I get them 3-6 times per months since going on Topamax. Before Topamax I got them 3-5 times a week. Only Ibuprofen works when they flare up.

2. back pain. This is a huge problem. Severe pain along the entire spine and back. It get worse with exertion. This is chronic and goes on all day, every day. Lortab is the only thing that works and really only takes the edge off. Seems to be getting worse as time goes on.

3. leg pain. Burning pain in the muscles from my butt to my ankles. Happens once or twice a week. Lortab takes care of it.

4. knee pain. Another major problem. Both knees are bad. sharp pains occur when walking, going up (especially) or down stairs or at rest. some times the pain is intolerable.

I've been through PT 3 time. I've been on every type of pain killer known to man. To date nothing helps but what I've mentioned above. MRIs, X-rays and CT scans show nothing obvious. I've seen all kinds of specialists. I've also tried accupuncture and Tai-chi.

Nobody has any answers. What I worry about if if this is some kind of systemic thing. Any thoughts?

Veteran Member

Date Joined Jul 2007
Total Posts : 554
   Posted 11/13/2008 3:23 PM (GMT -6)   
Welcome! you will find people to be very friendly here. we all have pain issues & we have all been there. let me start with my story. i am a 31 yr old female. my pain started back about 10 years ago. my back was always tender to touch (like if someone tickled me i was in pain). it wasn't a red flag or anything. then the headaches started. i was on & off meds for migranes for about 2 years. (i have had the shots & everything) well my dr. said maybe there was something wrong with my back. maybe i should look into getting it checked. my mistake was going to a chiropractor. i am not dissing them, but i had no idea how severe my back was injured. the pushing pulling & cracking really made things worse. fast forward a few years & several wrong diagnosis. eventually i was referred to a pain specialist. by this time my lower back pain was so severe i could barely walk. i had burning pain in both legs; predominatly stronger in my left leg. (from my hip to the toes) i think that was the moment i KNEW something was really wrong. i can't do stairs either so don't worry. i was lucky with my pain management drs. my dr is fantastic! he took an hour for an exam, ordered MRI's (which no one else had done) & just explained things to me. when the results came back i PROMISE you i cried for 30 minutes. all of my other drs made me feel crazy. like i was imaging this pain! ("too young" "drug seeking" "because i was a bartender") i tell you i heard every excuse! i have a lot of different problems. chances are the leg is either sciatica pain or some nerve damage. i have both. basically you have a disc on your vein, which causes that crazy tingly burning feeling down your leg. i take lyrica & cymbalta for it, helps a lot. the rest i can't guess at. but i would highly advise either a pain management dr, back specialist (i can't spell the technical name) :) or a neurologist. they will get you started on some treatments. there are a lot out there.... medication, of course (& my dr had said when we 1st met, it takes sometimes a few years to find the RIGHT meds to treat you) everyone is different of course. there are also many injections like trigger injections. basically you have a "twilight" sleep. (though i have actually just been numb & stayed awake once. you don't have to be asleep) where they take cortisone mixed with a pain med & inject it into the site where it hurts. they can also numb your veins to help with the burnig. both are very minimal risk. you are just a little sore afterwards. i am up once the meds wear off. not a big deal, just the one day down time. so thats all i have. i am by no means a dr so please consider seeing a specialist. i highly recommend a pain dr. my drs are very reputable, no complaints, they have physical therapy, surgery, medication. let me know how it goes. and if you have any more questions feel free to ask! (ps.... use ice when your back flares up) -Shannon *my laptop keys are sticking if anything is misspelled or out of place*
RX's: Oxycontin 60 MG 2x's daily; Oxycodone 30 MG 4x's daily; Soma 3x's daily; Lyrica 100 MG 3x's daily (all for pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x at bedtime; Cymbalta 60mg 2x's daily (for pain & fibro); Restoril 15mg at bedtime; Zanaflex 4mg 3x's daily; Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil

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