Burning Mouth Syndrome- Know anyone who has it?

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Regular Member

Date Joined Jan 2008
Total Posts : 285
   Posted 11/20/2008 5:19 PM (GMT -7)   
I am desperately seeking others with Burning Mouth Syndrome. I could really use someone to talk to who understands. I've tried to find people online but am having no luck. If you know anyone, please post and if they're interested, maybe we could get in touch.

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 11/20/2008 5:51 PM (GMT -7)   
Hi, Sophie,
Someone posted here a couple of months back about this, but maybe it was you? I don't have any experience with it, but if you use the search feature of Healing Well you should be able to find the older threads.

Take care,

Regular Member

Date Joined Jan 2008
Total Posts : 285
   Posted 11/20/2008 7:56 PM (GMT -7)   
It was probably me, PAlady. Mine is back with a vengeance. I'm looking for a live, current person with it and hope to find someone. You never know.

Thanks for responding. :)

Pamela Neckpain
Veteran Member

Date Joined May 2008
Total Posts : 1821
   Posted 11/21/2008 12:46 PM (GMT -7)   

I have this sometimes - mine isn't as severe as I think it could be. It goes away
and I forget about it. It returns and I worry.

I don't know what it is or what causes it.

What do I do: Change toothpastes, toothbrushes, use tongue brush, drink a lot of
water. There's an OTC product that might help -- Biotene Oral Balance (It's a dry
mouth moisturizing gel) Biotene also has other products. Try chewing gum like
Double Mint.

So ... I won't worry about it. Probably next week it will return and I'll be miserable.
Have you asked your Pharmacist, Dentist, and Doctor? It's not an unheard of problem.

Let me know if you find something.


Regular Member

Date Joined Jan 2008
Total Posts : 285
   Posted 11/21/2008 5:35 PM (GMT -7)   

Hi Pamela,

Mine ranges from pretty decent to nearly unbearable. It usually starts up in the gum above my two front teeth and travels around the upper palate. The top and sides of my tongue and the inside of the lower gum also get involved. It feels like a hot pizza burn or scald on all of my mouth. It just throbs.

I've seen several regular doctors and dentists who didn't even know what the h*** I had. I know they thought I was crazy. Finally I was reading one night online and figured out what it was called. I saw the name of a woman who did research on it and e-mailed her. She referred me to a pain doctor/ dentist in my area.

He examined me and gave me a mouthwash to kill thrush. It helped some and felt cool. He told me to take B vitamins which I am. He told me to get a script for Klonopin which I did and I took it. I didn't notice any improvement so I dumped the Klonopin and went back on Xanax as needed for anxiety. (which is what I was on before.) The guy also told me to get an estrogen level done which I did and my level was fine...I am not yet in menopause.

So there isn't any obvious reason I have BMS. I have a bunch of the risk factors, but I don't know of any cure.

I have read of trying chewing gum, but I teach and gum is not a good option for me. When my mouth gets bad my speech slurs as my tongue feels too "big" for my mouth.

My mouth always feels fine in the morning. No burning at all. It starts around noon and is at it's worse at bedtime. Xanax or advil don't touch it.

I do use a tooth guard...a plastic thing for teeth grinding? and this does give me some relief for some odd reason on very bad nights.

I'll look in to the biotene.

Thanks Pamela so much for responding. It is so nice to "meet" another person who has heard of this problem.

Veteran Member

Date Joined Apr 2006
Total Posts : 932
   Posted 11/15/2014 8:41 PM (GMT -7)   
i have heard this type of weather ph thing is good for Lyme as well. Do you know much about that Gailyn?
29 female
Dx's: Depression/anxiety, Non-Epileptic Seizures, repeat Rt. shoulder dislocations, NERVE damage after if IV infiltration with chemical burn in left arm,endo &ovarian cyst., chronic Lyme I could go on but will spare you all

Meds: ER and BT pain meds, nerve meds, holistic things, muscle relaxers PRN
doTERRA essential oils-Frankinsense, Lavender, Balance,peppermint, Clary sage,
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