Posted 12/7/2008 8:35 PM (GMT -7)
Very good thread David, thank you for posting this. Yes, it is very difficult to try and remain positive and optimistic but somehow we have to for sanitys sake. I was one that said you seemed to have a good attitude about things even tho you have so much on your plate. I also stated having your head on about surgery or pretty much any surgery is half the battle.
Getting to spend time with my 3 yr old grandson is what makes this Granny tick. He is my reason to get up every day and plow on, even with pain. Yes, sometimes I have him and I am in alot of pain, but when I have him here I am so enthralled with him, I guess I am capable of disassociating myself from the pain somewhat because I am so in tune with him. We have sword fights, throw rocks art the fence, play games, anything I can possibly do. He knows his Granny is limited in some things and he truly understands. Once in a while if a moan escapes from me, this little guy looks at me and says "it will be ok Granny, I will rub your back". I love this child more than I can ever put in words. What a doll he is. He just totally melts me, I am putty in his little hands. This child has a vocabulary that would knock your socks off. Even strangers will stop in a restaurant when they hear him talking.
I remember the months of laying in a bed in pain and doing nothing. Any job I do and complete, no matter how small or it may sound trivial to someone else, it makes me feel good. Medication and a good physcologist helped me in this area alot. I think learning to accept my limitations and not dwelling on what I use to be able to do has helped more than anything. I had a surgeon tell me not long ago that people that dwell on what they use to be able to and can't do now end up becoming very bitter if they are not careful. I believe him. This Granny will do, try pretty much anything to stay up on her feet no matter what.,lol
I have a pain pump and just lost my pm dr and I really have worried over this. He did refer me to a new one thank goodness. He told me its nearly impossible to get a new pain dr to take over an existing pump patient. They don't tell you this when they put the pump in either. Pam gave me some good advice about this situation and I am very grateful to her.
Pete how perceptive you are on on describing our forum these days. Back when I first came to the CP forum I also belong to the crohns forum, we did have a family type feeling then. Alot of members have moved on and so few of the oldies are left. These forums are for everyone not a select group for sure. We have many members not yet confirmed with crohns or finally crohns
ruled out and we beg them to stay and they want to because we have become a family on our forum and they are welcome anyway. Its not that attitude on CP forum and should be and I don't know where its written they have to have CP to be on the forum. I really hate to see a forum be that way too. Sorry I too am not trying to hijack David's thread.
I am still in the learning process and hope I stay that way. I feel when I stop learning about CP I will really be in trouble. Susie