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Posted 12/8/2008 5:49 AM (GMT -7)

Hey Everyone,

How is it that every Tom, Dick & Harry has an answer for your pain problems? Almost daily at work I have someone ask me about my limping or why my neck is so stiff I can't turn my head. Depending on my mood and my pain I will sometimes try to explain it to them. If I do, 9 times out of 10 the person will say, "Oh I hurt my back once and such & such Chiropractor fixed me right up! Let me give you his number, He'll make you 100% again!" Yes, I know they are just trying to help but it gets so old! I work for a large electrical contractor in S.E. Fla. as a purchasing manager and since I sign the PO's, I have vendors coming out of the woodwork trying to sell me stuff, especially in this wonderful economy. When they realize I have problems either seeing me taking meds or limping out to the warehouse, it's always the same. Everyone has the answer on how to fix me! Sometimes I feel like screaming and once in a while I get very rude with them and end up feeling bad about being a jerk. I'm sure y'all have had the same happen many times. Anyway, I don't have an answer, I guess I'm just venting.

Your friend,

Pete

55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. Fighting to stay upbeat daily. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive!!! Feel free to pray for me, I can use all the help I can get!!!

Posted 12/8/2008 6:45 AM (GMT -7)
AWE..........
Pete, Vent all you need to, sometimes it helps just to get it out...
Sometimes I will say something like "Been There, done that...ect" to these people
and sure as heck it can be very frustrating.....
Don't really know what else you can says to these folks...
Soft hugz to you, along with lots of wishes that someday you'll get a painfree day...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********

Posted 12/8/2008 7:05 AM (GMT -7)
Hey Chartreux & Pete's Trip!

Shhhhhhhhhhhhhhh! I got this hot tip from a lady the other day. (She claims she
used to work in a pharmacy!)

"All you need to do is drink purple grape juice," she said. "I know you'll feel so
much better. It worked for me one time when I had a backache."

On that cheery note, I leave you to have a day.

Pamela smilewinkgrin
Posted 12/8/2008 8:15 AM (GMT -7)
Hi Pete, welcome.... this is the place to vent! Pamela if someone told me grape juice would work for pain I would buy out Welchs..... The one thing I want to vent on....... drs & nurses. (not the ones who treat you normally) the ones who are, for example, the holy grail of ER staff. Famous sayings like: "you are on xxx, why are you here?" .... me:(pain).... "i can give you a shot of morphine, in the hip"...me:(are you kidding me?)...."you need to get off these medications, you can become addicted"...me:(sigh)..."addiction, addiction, addiction"..."too young"..."does it hurt here"...me:(ugggggh you dumb, dumb dr I said I had a break there- so don't poke!).......... I think I will come up with some Shannon-ism for people in pain. What do you guys think?
I just can't stop thinking about your post Pamela, I have been laughing the whole time. Seriously? Grape juice! She must have just had gas cause there is not a back ache I have that is cured by food or drink, pills barely make a dent some days. Thats like saying your house is in foreclosure but if you buy some windex for your windows it will be ok. Where do these people hail from? grape juice.....
RX's: Oxycontin 80 MG 2x's daily; Dilaudid 8 MG 4xs daily; Zanaflex 4mg 3x's daily; Restoril 15mg 1x; Soma 3x's daily; Lyrica 100 MG 3x's daily (pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x (chronic pain); Cymbalta 60mg 2x's daily (pain from fibro); Metoclopram (as needed) & Senokot (as needed).

"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."

- Dr. Phil

Posted 12/8/2008 8:22 AM (GMT -7)
Someone told me that grapejuice is highly addictive when taken in high doses by CP'ers!
55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. Fighting to stay upbeat daily. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive!!! Feel free to pray for me, I can use all the help I can get!!!

Posted 12/8/2008 10:55 AM (GMT -7)
Pete:
I'll be seeing this "health advisor" over the Xmas turkey. If she mentions grape
juice I will certainly tell her what Dr. Pete Tripp said, "Grapejuice is highly
addictive when taken in high doses by some CP'ers"
Pamela smilewinkgrin
Posted 12/8/2008 11:40 AM (GMT -7)
Pamela,
Swimming in the ocean is wonderful for my hip, knee & shoulder pain but walking in sand is horrable! Taking a hot shower till the hot water runs out is great my back & neck pain is wonderful but getting out into a cold room and shivering is hell on your nerve pain. Eating comfort food makes me smile and takes my mind off pain but since all comfort food is fattening, weight gain plays hell with all my health problems>>>>> I can't win!
Your buddy,
Pete
55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. Fighting to stay upbeat daily. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive!!! Feel free to pray for me, I can use all the help I can get!!!

Posted 12/8/2008 12:45 PM (GMT -7)
Oh, wow, this thread has at least given me a good laugh (and that should cure me, right?? smilewinkgrin).

I grew up on Welch's grape juice. Seriously. My Dad worked for them. And I drank it regularly. REGULARLY. Maybe that was my problem? Maybe that caused all my pain?? smhair smilewinkgrin

Good thread, Pete. And Pamela, priceless!

PaLady
Posted 12/8/2008 1:09 PM (GMT -7)
Pete,
You're so funny. ;)
I can definitely relate though about all the fun people (esp. at work) who gift us with their sage advice. A few years back I got so frustrated that I printed up a full-page sign that I kept face down on my desk. It said something like "yes, I'm in pain. I'm okay. I have all the help & advice that I need but I appreciate your concern. If you'd like to help, you can help me keep my mind off it by pretending I look normal. Love, (frances)". I would put it up on the file cabinet in front of my desk anytime someone would say something to me.

Good times. I got some glares, scowls & questioning looks. There were people who gossiped about it for a while. My boss had the employment law attorney with our company speak at a staff meeting about how constantly asking about that could be perceived as harassment & that he would appreciate if people could reduce the company's litigation risk by not bringing up my disability any more. I won't say it was especially pleasant, but it did get me to the point where most days I can work in peace.

Interestingly enough, the few people (mostly clients) who do still say something to me are the ones who suggest illegal treatment options. I'm not really sure how they think that if I was unhappy to hear about how if I would just rub butter on my back & jump up and down 20 times in a row exactly 5 times per day that I would be "cured", that somehow I would be much happier to hear about how to search out a "cure" by breaking the law, but every couple months some yahoo corners me (easy to do, I'm not very fast) to tell me of their evil little exploits.

All you can really do is laugh about it (or maybe write satire -- I know a lot of my pain-free friends have said that even they think some of the advice I get is hysterically funny). I think I would call the book "The Answer -- everything you ever wanted to know about how to cure your pain RIGHT NOW (and probably a few things you didn't). With contributions by everyone's best friend, their best friend's dog, the butler, the maid & the postal delivery guy."

What do you think?
I'm definitely putting the grape juice cure in there! Here are a few others that are sure to bring you that elusive healing that you could have if you just knew a few simple tricks. Enjoy!

1. Use a straw for all your drinks. Personally, I think it's effective because the straw kinda looks like a magical wand if you squint just right when you're looking at it, but I was told by some random person in the mall food court that tilting my head back was throwing my body out of alignment & that was why I needed to wear a back brace. How did she know?!!! And what is wrong with my doctors that none of them could figure out!

2. Exercise for 2-3 hours per day. Yes, I know this one was posted to the Forum recently, but I actually heard it first from my dad. He says it will bring down inflammation. Now, yes, we all know that typically our bodies become more inflamed with excessive exercise but it *definitely* works ;) & now I've figured out why. You have to get absolutely drenched with sweat. There are special fairies that are attracted to the shininess & they will enter your body & POOF the pain & inflammation will be gone in an instant.

3. Licorice Hot Tea (don't forget the straw, I think it works best when you mix & match). That one was a freebie from some samples lady in the spa. Not really sure how it works, but it worked for her & that's why she now works at the company.

4. Ibuprofen. Yep. I just need to trade up my fentanyl for a box of Advil & I'll be super good in no time.

5. Organic foods. Courtesy of a former boss. A guy I dated also suggested this. There are toxins in my body & I need to get them out. I don't need any medical care. The doctors are just trying to scam me out of my money (but somehow $15 for a tomato is not a scam). My body can heal itself from any injury, illness or infection as long as it gets locally grown, pesticide free food. Don't you know? That's why people in the 1800's lived so much longer & healthier lives than we do today. Wait. They DID live longer, didn't they?

he he. :) anyways, hope that brightens your day. I do feel for you. I really do. I wish I had better advice to offer you. I wish I knew myself how to dodge all the crazy advice that comes day in & day out. However you can cope I suppose is what's best. Take care & come back to vent any time.

GB,
frances
Posted 12/8/2008 1:50 PM (GMT -7)
Great post Frances!!!!!!
Yes, you relieved my pains but my ribs are hurting from laughing at your bag of tricks! I think I need to post on this forum more often, there are some wild ones here>
Thanks, I needed that>
Pete
PS> (wild bunch>PAlady>KTTN>Chartreux & of course Pamela!!!
55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. Fighting to stay upbeat daily. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive!!! Feel free to pray for me, I can use all the help I can get!!!

Posted 12/8/2008 2:42 PM (GMT -7)
Guys you all have missed the big one.

I have heaps of people tell me its diet coke and all need to do is drink normal coke.

I better start the new pain management plan today :)

old plan ;) TRAMADOL 200mg x 2 daily, Panadine Forte x 8 daily, Oxycodine as needed, Voltaren 50mg x 2 daily, lie down when get to sore.

New Plan ;) get rid of all the drugs as the doctors are scaming me and change to grape juice (better limit the dose due to being addictive) and only eat organic and I can not forget the Ibuprofen for the BT pain. and a run for 4 or 5 mile should get the sweat up (and get the fairies working)

lets face it the new new plan can only work or if I end up in hospitial may be I need to change to a 10 mile run the next day and add an extra glass of grape juice.
Thanks

David

Posted 12/8/2008 4:50 PM (GMT -7)
OMG...
ROFL
Thank you...
**********************************************
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd, Enlarged Pituitary Gland
******** "We could never learn to be brave and patient if there were only joy in the world" from Helen Keller *********

********>^..^<********>^..^<********>^..^<********

Posted 12/8/2008 5:01 PM (GMT -7)
Most of the time I dont get this kind of advice.What I get is people asking me what happened to you.I really dont think thay want to know. I think if I told them thay would turn around and run so that thay dont have to think about it.I did get some advice from a checker at the gas station.She says if I go to the naturepath and have him work on me and use this 100 % peppermint oil from china that I will feel really great.She says it works great for her knee(she says that she has water on it).But the funny thing is that I walk with a cane because of my hip and when she seen it she rememered that she needed to call her freind to barrow it because it makes it so much easyer to walk.I dont know about you guys but I think I will stay on my fentanyl patch.
Lost half of my small intestineJan.2008.Ilieostomy for 5 months then reverst in June 2008,Nerve damage to right leg,part of my right hip bone removed Jan. 2008,Cronic pain,hernia,infection in my back called discites,and depression.Gallbladder removed Nov,2008.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.

Posted 12/8/2008 6:47 PM (GMT -7)
HO HO HO

nono

Next thing you know, someone will come along and bust us thinking our Grape Juice
was spiked with Vodka.

Holiday Hysteria has hit the Hood! scool

Post Edited (Pamela Neckpain) : 12/8/2008 7:03:54 PM (GMT-7)

Posted 12/8/2008 7:28 PM (GMT -7)
Oh, I just hate this! I have this one aunt who always suggests things. I know she means well, but it drives me nuts! Can't think of any funny suggestions I've gotten at the moment as I'm not feeling very well from a horrible expereince with medication side-effects this weekend, and then going through withdrawls today from not having taken any meds in 36hrs.
Posted 12/8/2008 8:53 PM (GMT -7)
skeye why are you going through withdrawls? everything ok?
RX's: Oxycontin 80 MG 2x's daily; Dilaudid 8 MG 4xs daily; Zanaflex 4mg 3x's daily; Restoril 15mg 1x; Soma 3x's daily; Lyrica 100 MG 3x's daily (pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x (chronic pain); Cymbalta 60mg 2x's daily (pain from fibro); Metoclopram (as needed) & Senokot (as needed).

"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."

- Dr. Phil

Posted 12/8/2008 8:58 PM (GMT -7)
I have been having myself a good hard belly laugh reading this stuff. And the sad part is, so many of these very people think they are so right with their cure all. If I could get down on the floor and luagh my butt off, I would, but someone would have to come get me up,lol.  Seeing me get up from a floor is not a pretty sight for sure, I am kind of like a bowling ball rolling around.

 

I have been told by aquaintances & family the only thing I need to do is get off of all my drugs except my BP meds. This also includes my crohns drugs and colitis drugs. All I am doing is destroying my system with the drugs. I am poisoning myself. Oh, I forgot when I am having a bad flare with crohns or get to spend a week in the hospital with a severe flare, it just had to be something she ate!!!!! If she would eat right this would not happen.

 

Now, I guess the rush is on for Grape Juice. Humh, not long ago it was pure cherry juice and the beat goes on,lol. But, just to be on the safe side, I will go get me some Welches tomorow and see how much better I am going to feel. Suppose it will cure my crohns & colitis too. I will confess to buying a bottle about 2 months ago, funny thing happened, my PM dr had to increase my pump after that, not a good sign folks,lol. Don't flush your meds yet.

 

Oh Pete, I could have written your post, still laughing from reading it. Hugs to all Susie

Posted 12/8/2008 10:43 PM (GMT -7)
Pete - me, in the wild bunch? devil
Woo Hoo! smilewinkgrin

Ryand - where are you? There's a new party thread incubating inside me, and those of you who came to the Beach Party remember that, right? shocked

Frances that list...ROFL. tongue

Maybe we should all get a roll of toilet paper and list everything, and each person that comes along with a new "cure" can just add his/her idea to the roll. They'd have to write it out, though, after reading all the other suggestions. Think they'd get the hint? eyes

PaLady (---->one of the wild bunch!)

{{{{{{Skeye}}}}}}}
Posted 12/8/2008 11:55 PM (GMT -7)
Hey Pete!

So many know exactly what you are going through. I suppose many of the folks offering advice do mean well, but those trying to sell you the latest snake oil are trying to profiteer off of your pain. Now THAT gets me spun up! Try some fun line on these folks like... "People like you are the reason People like me need medication." Sometimes I go out to cafepress.com and read t-shirt slogans. You can get some great comeback lines there.

Will keep you in my prayers, Pete!
Chutzie
Co-Mod Fibromyalgia & Chronic Pain Forums
~~~
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.
***************

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)

Posted 12/9/2008 12:13 AM (GMT -7)
oh boy...... chutz. i can't wait to read this!
RX's: Oxycontin 80 MG 2x's daily; Dilaudid 8 MG 4xs daily; Zanaflex 4mg 3x's daily; Restoril 15mg 1x; Soma 3x's daily; Lyrica 100 MG 3x's daily (pain & fibro.); Phenergan 25 MG (as needed); Amitriptyline 25 MG 1x (chronic pain); Cymbalta 60mg 2x's daily (pain from fibro); Metoclopram (as needed) & Senokot (as needed).

"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."

- Dr. Phil

Posted 12/9/2008 5:29 AM (GMT -7)

Pain = Humor???

OK, I get it now. We the people who are in constant pain, some of the most miserable people on the planet are some of the best commedians because we have to be! If a painless person were to read over these posts, they probably wouldn't get the humor because it's mostly inside matterial that they wouldn't understand and think we were just a bunch of sillys high on drugs! I personally think that humor is better than any meds the medical community has ever come up with for my CP!! I belong to a prostate cancer forum, not Healing Well but another one who sends out a list of jokes every day to it's members. The jokes come from the members and they are hillarious! Some of these guys who are terminal and fighting for their lives come up with the best jokes of all! Oh, their wives too and alot are off color if you know what I mean, which is allowed. Afterall who would tell a dying man not to tell a dirty joke?  So I say, lets get wild! I know we have to keep it out of the gutter on this forum but we can still have some fun. Maybe we could have a daily joke post if it's OK w/ the moderators??? Well, long post and I'm at work and getting behind so think about it and let me / the moderators know what you think?

Thanks for listening,

Your friend,

Pete

55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. Fighting to stay upbeat daily. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive!!! Feel free to pray for me, I can use all the help I can get!!!

Posted 12/9/2008 6:30 AM (GMT -7)
Oh boy, I just read all these posts and I can't help but laugh my tush off! See, all you have to do is laugh and the pain magically disappears! Ok, not really but it does put the mind in the right place ya? When I tell someone what is wrong with me, it seems that they have something worse and then they make it seem like my pain isn't real and not as bad as theirs. That may well be but my pain is still very much real to me and nonetheless as bad. I haven't had anyone tell me how to help my pain but I have had numerous people offer advice on my other ailments. So I can definately understand the frustrations!

 @--->--SHERRY--<---@

Moderator for Allergies/Asthma and Co-moderator for UC

~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Bentyl, Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Year-round allergies-Singulair, Zyrtec~Secondary Reynauds Syndrome-'04-Norvasc~Sacroiliitis-epidural injections~bulging and herniated discs C5/C6 & C6/C7~3 epidural injections-worked great!, OA in my fingers 

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Posted 12/9/2008 6:55 AM (GMT -7)

Hey Red,

I was waiting for someone to bring that up. You are so right, why whenever you tell someone that you have problems that cause you intence pain, they always assure you that their pain is worse and they don't need any meds to control it. It just always ends up in a big pissing contest! I HATE IT!!!

Thanks,

Pete

PS> I don't loose too many pissing contests when I get egged into them> I've broken more bones than Evel Kenevel!!!

55 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy (Testim Gel)since 12/06 but switched to a higher dose of (Androgel) 6/08. Fighting to stay upbeat daily. I am's what I am's and that's all that I am's! (Popeye)  55 and still alive!!! Feel free to pray for me, I can use all the help I can get!!!

Posted 12/9/2008 8:38 AM (GMT -7)
Red & Pete its like a competition with folks and who can have the worst pain or the gorest surgery. I can guarantee you if you lined up 10 woman that had a hysterectomy for instance, each story would get a little worse than the previous one. Its pathetic people feel they need to rise to that level but they do. And our pain is non-existent compared to theirs but you also don't see them on any drugs either,lol. Oh well, whatever blows their skirts up.

Yes, I do believe laughter can be one of the best medicines and I love to laugh. Hugs to all Susie

Posted 12/9/2008 12:49 PM (GMT -7)
Pete,
I'm lovin' this thread but I do recall a few months back someone started a joke thread and it got off track very quickly. This is designed to be a family friendly forum, that even children could read. So may it's best to just let it happen spontaneously like this thread did? Just my two cents. Chutz can chime in when she gets a chance.

I have to go now because I have to go buy some peppermint oil and straws and grape juice (oh, no, wait, I've had too much of that as a child!) and classic, non-diet coke and put them all in a back pack and run around the block for 2 hours so the fairies can lick off the shininess (or something like that). When I come back my pain will be gone forever...just wait!!!

PaLady smhair rolleyes

Post Edited (PAlady) : 12/9/2008 1:56:30 PM (GMT-7)

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