I also wanted to take the time to welcome you to HW's Chronic Pain Board! I'm so sorry to hear about
all the pain that you are in from Lyme Disease! I live in an area of the US where Lyme is very prevalent (to say the least), and in fact I have had it multiple times myself. However, I was lucky in that 2 out of the 3 times we caught it very early, and the other time we still caught it early enough that I responded well to antibiotics. I still get retested for Lyme all the time, as it theoretically could cause some of my chronic pain & I know that once you have it, you'll have it forever, although in most cases it lies dormant (although at this point, I've had so many tests done that it isn't really on the table as a cause any more). I know that this is somewhat off topic & I don't want to compare this to your situation, but one of my dogs has had chronic Lyme disease since she was about
a year old & many vets, including several veterinary ophthalmologists told us that she was going to go blind (it mostly manifested in her eyes, although she has some severe joint problems from it as well). Doxycycline didn't work for her, nor other conventional treatments, so she now goes to a homeopathic vet, which has been a godsend. She'll be dealing with this for the rest of her life, but at least now, it is reasonably controlled.
I'm a big believer in alternative medicine & treatments, so I think acupuncture or another therapy might be worth a try for you. I go to acupuncture myself & it has definitely help me. Granted not everything works for everyone, but you don't have much to lose, and a lot to gain. As for what you have said about
the pain meds not always helping. That's probably something you'll have to live with. I don't know of anyone here (or really any one at all) who's pain has been completely taken away by pain meds. But you can certainly work with your doctors to find a combination of medicines and therapies that work the best for you. Unfortunately, I've realized that it is somewhat of a trade off between what you have to give up and what you can gain. As Susie said, if you aren't seeing a pain management specialist, you may want to consider seeing one, as they can help you with both medication management, and injections, etc for pain relief.
I hope you get some good news from your MRI (although unfortunately, from what you wrote, it doesn't sound like it will be good
). I am very sorry to hear of your situation. I know that Lyme can be a horrible, crippling disease & it saddens me to hear about
your affliction with it. Keep posting & let us know how everything goes! If you stick around, you'll see that this is a wonderful place to come for great support and ideas!
Post Edited (skeye) : 1/8/2009 9:57:26 PM (GMT-7)