Does anybody here feel that they properly treated for pain?

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Regular Member

Date Joined Apr 2007
Total Posts : 117
   Posted 1/10/2009 12:52 PM (GMT -6)   
It seems that all we do is jump through hoops wait for appointment's spend every last dime we have and still can't get away from the pain. we clock watch waiting to take our next meager dose for a little help. Sleepless nights and the everpresent fear that our Dr. may quit practicing pain management. I'm sooooooooooooo frustrated. We need an advocate. We have to do something. This pain thing turned my whole live upside down. 24/7 I deal with pain. I want my life back!!!!! This is so unfair I know that in a bottle on the shelf of any pharmacy is stronger medication that could manage my pain. My girlfriend (also chronic pain) and I fantisize about what we would do if we let lose in the pharmacy. This is just sad

New Member

Date Joined Jan 2009
Total Posts : 1
   Posted 1/10/2009 7:39 PM (GMT -6)   
Hi jenpen iam new to this forum but have been on many others i to suffer with chronic pain for over 3yrs due to an accident at work ,i have been on a pain management programme and the doctors their monitor you closely,i am on alot of drugs to combat the neuropathic pain that i suffer, you do not say what type of chronic pain you suffer or where in your body.Mine is in my right leg which was crushed and nearly amputated i had to have emergencey surgery to save it .i have learned alot about the sleepless nights and the 24/7 pain.i attend a specialist nuro hospital that deals with all types of pain if i can help in anyway i will

Forum Moderator

Date Joined Jan 2005
Total Posts : 9289
   Posted 1/10/2009 11:55 PM (GMT -6)   
Hi jenpen...

I'm here to report that there are good doctors who are not afraid to help patients with pain, but they seem hard to find. But also consider, if you are well treated for pain would you likely be on a forum sharing about it. So, what you read on forums are not truly representative of how all people are treated.

That said, if you do some reading back through the pages you will find story after story of such poor's shameful! I am very lucky in that my family doctor knows and understands chronic pain and believes in helping you have some quality to your life. We work together and he trusts me totally. But I've never given him a reason not to. Also, I'm not young and that's a problem in itself.

So there is hope!
Co-Mod Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)

Regular Member

Date Joined Aug 2006
Total Posts : 142
   Posted 1/11/2009 3:37 AM (GMT -6)   
I know I am not. There are definately similar stories on the pain meds post that is up right now.
Dx: UCTD vs autoimmune spondyloarthropathy vs psoriatic arthritis (ie Limbo x5 yrs) Raynaud's, proteinuria
Rx: Plaquenil 400mg, Ultram PRN, Sulfasalazine 2 gram

Pamela Neckpain
Veteran Member

Date Joined May 2008
Total Posts : 1821
   Posted 1/13/2009 4:20 AM (GMT -6)   
I am fairly well treated. I know from reading here that it could be much worse.
Read my post about the pharmacist I had dealings with today. I've never given
any doctor any reason to not trust me. I don't take more medicine than I'm
prescribed. EVER. My MRI's show the story of pain.
I've been to all the fancy hospitals and did my time in a pain clinic.
It's good that Chutz has a kind and understanding family doctor. She's lucky and
I just know she doesn't live in California.
Family doctors in California rarely if ever prescribed for long-term chronic pain.
I had a wonderful doctor who wanted to prescribe for me but he was in a group of
other doctors and they all decided not to write scripts for Opiods. Too much
liability, etc. It's terrible.
As far as I know the Paranoia with doctors is a fairly new phenomena. That's why
all the pain clinics have sprung up. Pain clinics really get your money. In order
to get your needed medications you go through a psychologist, an MD, a physical
therapist and a biofeedback RN and your doctor. After you have gone through the hoops
they all get together and you have a conference where your future is decided.
My doctor quit midstream so I did not have to do all that. There's no way
I could have afforded it.
Be careful with those fantasies, girl. We both know there can be too much of a good thing.
At the beginning of my medical care my treatment was terrible. I live in fear that the other
boot will drop and I'll be without a doctor for one reason or another. Me without somewhat
decent medical care ... unthinkable. UNDOABLE. Terrifying.

Forum Moderator

Date Joined Feb 2003
Total Posts : 16804
   Posted 1/13/2009 10:45 AM (GMT -6)   
Jen I too have been very fortunate in pain mgt. When my pain went out of control on me it was a PCP that put me on the low dose Fentanyl Pain Patch. I had treated with that clinic for over 10 yrs and there was just one other episode of me needing something for back pain in my chart. We tried some other meds but they did not work at all on me so he gave me the patch. I admit I was shocked. But, he trusted me and knew when I said in was in serious pain I truly was. Prior to this I had been under the care of various specialists and a pain mgt dr  and they all took very good care of me. Unfortunately, my pain mgt dr died.
It was my gastro that sent me to a pain mgt dr that he knew of and trusted his patients with, several years ago.  He was a true angel, so good with his patients and very caring. It took quite a while to get an appt with him too. The bad news is he informed me in Nov. on my last appt that he was quitting pain mgt and going back into what he went to school for in the first place, anesthesiology. He told me the reason he was quitting was because of all the extra crap that gets put on pain drs and he was just tired of it all. I was devastated. I have a pain pump and he found another dr to take over his patients that have the pumps. I do not know this dr personally and will see her next week for a meet & greet. The one thing I do know about the new dr, she is a neurosurgeon and pretty much retired from that and began pain mgt 5 yrs and pumps are her thing. I know her patients were all very loyal to her and that says alot.
Finding a good pain mgt dr can really be a task. If your dr is not willing to work with you and find medications that will cover your pain, then you need to scout out a new dr. It takes alot of hard work, but there are many resources available to find a good one. It is never easy finding a new dr but it can be done. I don't think I would care for the "pain clinic" setting that Pam wrote about at all.Susie

Regular Member

Date Joined Jul 2008
Total Posts : 368
   Posted 1/15/2009 12:33 AM (GMT -6)   
I feel like a beggar for whatever I get and then Im suppose to dance with happiness when i get a script that barely does the trick and I to spend all my time being terrified that my pain specialist will stop practising.   sue2z mad
Fibromyalgia, ulcerative colonitus, arthritus, bi-polar
norspan patch, valium, prothiedon, lyrica

Regular Member

Date Joined Jan 2006
Total Posts : 142
   Posted 1/15/2009 7:40 PM (GMT -6)   
I have yet to be to a pain doc since I still don't have any insurance. But my ortho and my PCP are really good at keeping me on the usual stuff. I am the one that makes myself suffer since I am scared to death of addiction and I don't take them as often as I should. My hubby gets on to me all the time. From what I understand the pain clinic one town over is really good and seems to care for the overall well being of it's patients. I am looking forward to going once I finally get my disability( that is a whole other nightmare, lol)

Is there another clinic that you could go to since you are not happy with that one?
Motorcycle wreck 08/2004: 119 fx, 13 surgeries with one more to go, including 5 bone grafts, 2 skin grafts, pelvic reconstruction x2. Right leg is 1.5" shorter than left. Have to wear knee brace for life and also AFO brace for drop foot. Nerve damage from hip down to toes, no feeling in lower leg. Spinal fusion. Will be on crutches the rest of my life. Pain level never below 5 even on pain meds. Since August 2007 I have been diagnosed with chronic atelactesis, tachycardia, high blood pressure, borderline personality disorder, depression and Delayed sleep phase syndrome

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