Well, my MRI results are back. I may be starting to get some answers!
The MRI showed that there is a "gross enlargement" of the optic nerve. My doctor said it was basically taking up all the space behind my eye. BUT, now here's the kicker, he said that this should NOT cause all the pain that I'm in -- some of the visual & functional problems yes, but the pain, no. That just doesn't make any sense to me, because if the nerve is so huge, then wouldn't it be compressing other nerves & tissues back there (which was our original thought)?
This doc is not very helpful, he is very curt, blunt & is not willing to theorize. I've got to call my regular doc tomorrow (today was a holiday, so he was off) to discuss this with him. I'm sure he'll have some thoughts about
all this & will probably be much more helpful. He is great. I guess it helps that he has been seeing me regularly for the last 20 plus years.
I'm so relieved to have FINALLY found something, even if we don't know what it means yet & it is not the main culprit of all this pain. At least it is something, a clue. I saw my pcp today & he gave me a big hug & said "congrats, you're not crazy! I knew it."
I'm now on massive doses of prednisone for the next month to try to decrease all the swelling. It's not going to be fun. Last time I was on this much prednisone for my eye, I barely made it through ONE week, the side effects were so bad (not to mention it didn't help at all). This doc doesn't actually think that the prednisone is going to help (at least with the pain, especially since I've been on it in the past, with no luck), lovely, right? But he wants to thorough, so I'm trying it for now. We'll see.
First day of classes for the semester is tomorrow. Wish me luck! I'm sure going to need it, with everything going on. I'm going to try it out for a week or two before I make any decisions about
dropping classes, or dropping out for the semester, or longer, in general.
I apologize if I rambled at all. It has been a pretty crazy day for me & my brain is kind of fried between the pain, stress about
starting school tomorrow, the MRI findings, someone trying to steal my car from a parking lot on campus last night
, and this psychiatrist I saw tonight who basically told me that I am depressed because I was going through oxycodone withdrawls (as I'm currently tapering off of it to re-evaluate where I'm at after being off of it for a week or two), but I won't go into much detail about
that. I did yell at him, or at least forcible argue with him though, as he was waaaay out of line, since the depression started long long before I was even on ANY pain meds & in the couple of weeks that I've been tapering, I've never once felt ANY withdrawl symptoms, because my doc is doing a nice slow controlled taper. If he had actually listened to anything I had told him over the hour we were talking he would have known this. I'm going to try seeing him one more time, but if I don't care for him again the next time I see him, I'm going elsewhere. I don't need this, I don't feel like he really listened to a word I said, and he was certainly not easy to talk to. Okay, sorry for getting off topic.
Post Edited (skeye) : 1/19/2009 9:48:37 PM (GMT-7)