I saw my new pain mgt dr this morning and she is taking over the mgt f my pump. All I can say is WOW, and my head is still spinning. This lady has a different approach to pain than the run of the mill I have seen. She has her own sheet with lots of info on rating the pain scale. Not the little smiley/sad face thing. Hers is in depth but brief. Keep in mind she is a a neurosurgeon turned pain mgt specialty.
She had reviewed my chart from old dr and then saw where I rated on my pain today which is bad. I have not bounced back from running the sweeper in 2 rooms a few days ago, plus I have been getting the burning in my butt, which is new for me, incredible left hip pain. First thing out of her mouth was" Your pain has been undertreated"!!! My mouth fell open, she went on to explain that so far all the patients my old dr referred to her that she has seen, every single one of us had their pain undertreated, we are all pump patients. She went on to tell me that all tho my dr was a very good dr, he was not educated enough to be handling pump patients, therefore, we were not getting the full benefit of having a pump!! I will get you your life back to where you are able to function every day at a decent level!!!!!Now, my words were, you mean to tell me that the last 4 yrs I have sucked it up and decided even with the pump this is the way things will be and I keep pushing all my buttons as hard as I can to keep going, because I have always had the fear if I didn't keep pushing I would get down and not be able to get back up. Are you telling me I have suffered in silence because I have a pump, I am not suppose to hurt this bad. I had even began to think maybe this pain was in my head, after all I have a pump. Her next comment was, I see you have 2mg of Dilaudid for BT pain, do you take it, I said no rarely because it didn't help, I lived off Zanaflex. I told her I did not get a new script of pain meds every month because I felt like I was wasting money buying them. She said well, I did not know it came in such a low dose, therefore, I am giving you a script for 4mg and you may take 1-2 tabs 4 times a day!!! And when you come in on the 28th, I will be increasing your pump 50% and then you are to come back in 3 weeks, sooner if needed then it will be a 10% increase until we get you where you need to be. Also, when I refill your pump on the 28th I will be decreasing the Bupivacaine from 15mg to 7mg, because that doseage is way too high, it causes leg problems. The purpose of Bupivacaine is it helps the pain medication to actually adhere to the pain receptors. WOW- so much for this brain to comprehend. I had to just sit in my car in the parking lot with my head swimming. I do know of this leg problem because many peeps on the Pumpsters site are having a terrible time with their legs and their drs are not smart enough to know what that med is actually used for and they keep increasing it on these people and their legs are getting worse to the point some of them legs are getting so weak they cannot stand.
My dr went on to tell me she is the top rated pump dr in the state of Texas and she has more pump patients than any other dr. Therefore, she writes more scripts for narcotics than any dr in the state. The boys from the DEA paid her a visit and told her she was a naughty girl for writing so many prescriptions to people. She let them have full rein of course of her medical records and anything else they need to review. After they did their audit, they shook her hand and told her to keep up the good work. She told them they were welcome any time to come in her office. In addition, she is no more intimidated by the DEA than she is a bird pooping on her windshield,lol.
All I can say is I am still in shock by todays events. Is this a dream? Will I wake up tomorrow and it be a farce? There is no pain Contract to sign in her office. There are no signs posted anywhere. There are no ua's done by this dr.
So, what do I make of this visit. Anyone considering a pain pump, please do your homework on your dr and find out how long he has been working with pain pumps, whats is his education on pain pumps. I read on another site and this is so true, a pain dr can make your pain pump either a success or a failure. I found out today this is so true. Do not hesitate asking your dr about his experience with pain pumps. The way I see things now, my dr did me a favor by quitting pain medicine. Maybe in his heart he knew he was out of his league, who knows. I always felt like I had good care with him and still think I did. He did do things that helped my pain so I take nothing from him as a dr.
So is this a dream? What do you all think???.......Susie