My doc told me the other day on our visit that I am defiantly a "Chronic pain" patient (which we always knew, but somehow was more confirmed to him now) and that my body is addicted to, and really in need of, pain medicine, but that I am NOT an addict. I didn't understand how that was possible, so he explained that we all have "opioid sencors" in our brains, and mine are like way out of control to the point where when I don't take something for pain that I am experiencing, it responds by sending signals to my body for MORE pain and more and more! He says it also has to do with my Crohns/IBD. There is no cure for it according to him except by actually giving me opioids (which I was never on before) and he thinks it would help me tremendously with my anxiety, pain,and even my GI! The name of the opioid is "Suboxone" and is generally used for addicts but he explained that that is not what they are using it for on me. It is, afterall, a pain medicine.
I'm so confused and scared. I told him I would do research and get back to him, and that also I wanted to maybe wait and get off the prednisone before starting it - should I choose to. I always thought that the flu-like pain and symptoms I experience were/are from the Pred, and that once I'm off of it it'll go away. He disagrees with that. I mean do I really want to be on opioids the ret of my life and then get addicted to that and never be able to come off??
Then there is the other side of things..my day to day life of torture and not being able to do a thing because of the amount of pain and discomfort I am in until I take my Ultracet (Tylenol/Tramdol). If I don't take them every 6-8 hours I can't function from the pain! Its to the poinht where I find myself saying "If someone is giving me a medicine that takes my pain away, makes me happy and calm, doesn't have sideffects, will not effect my liver (like taking too much of Tylenol eventually will), AND possibly make my crohns/IBD better, THEN JUST GIVE IT TO ME I'LL TAKE IT!!!" The doc says he can hardly believe all the AMAZING results hes seen on chrinic pain patients on this med in all those aspects!
I need some insight guys. Have any of you heard of all this before? How about of Suboxone? What do you think?? Please help!
Dx w/ UC 2000J-pouch surgeries in 2002 - colon removed except for last tiny part of sigmoid & rectum which keep inflaming;
Currently in remission from August hospitalization and tappering off Pred. (now 2mg);
Currently battleing: Auto-immune disorders: Crohns-Colitis/IBD & Crohns-related arthritis; anxiety disorder; mild asthma (chronic bronch); & sideffects from Pred :(
Remicade once ever 4 weeks
Prednisone, Cymbalta, Klonapin, Famotadine, QVAR, Ultram/Tramadol