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Pamela Neckpain
Veteran Member

Date Joined May 2008
Total Posts : 1821
   Posted 2/11/2009 11:04 PM (GMT -6)   
I'm always in a panic it seems. Always worried.
I think I need a Xanax and a half
Do you worry about stuff like a hostile night call from your doctor?
I hate him because he doesn't believe that I have pain.
Would you just blow it off. smhair


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Date Joined Jul 2008
Total Posts : 2317
   Posted 2/11/2009 11:28 PM (GMT -6)   
I don't think he was saying you're not in pain. Fibromyalgia is a painful condition. In order to even give the diagnosis you have to have pain in so many joints so I'm pretty sure he believed you are in pain. I'm a little confused about what you wanted. It seems like usually you are complaining that you don't want drugs or surgery or anything. You can check on the Fibro forum, but from the people I know who have it they usually aren't given narcotics for that dx. That's not to say you don't need methadone for your other issues, just that the best treatment for the fibro piece maybe is OTC meds and behavior modification (a former co-worker of mine had to be very strict about her activity levels & never, ever go even just a little over what she was allowed to do. her husband & kids had to help her even with the simplest things like carrying in the groceries or hanging a picture on the wall. it was super tough on her to make those changes, but after a few years & a short while on Lyrica, she was able to return to the workplace & prepare meals like she always used to love to do pre-fibro. once she got her routine down, she really was only taking Motrin to manage her fibro symptoms). The Fibro people really could tell you better; I just think maybe you need to find out what the normal treatment is before you decide whether or not to try the doc's advice.

Only you know what you want out of a doctor, but I think at some point you need to decide what you are & are not willing to tolerate in your doc and stick with it. I do wish that all of us could have perfect doctors all the time, but that's not too likely to happen. Even the best docs have bad days. I know I get into arguments with my PM b/c one day he'll tell me to cut back on activity & just take more meds, then the next visit he tells me I should have tried to cut down on the meds on my own and be more active. I put on my angry face & tell him he's just completely confusing, and sometimes I even go home and write hostile letters to him cursing him & his family (which I promptly shred almost as soon as I finish writing them), but at the end of the day, he really does quite a bit to help me so I am willing to put up with his crazy moods. After all, he has pain problems himself & that is both a blessing and a curse. On the upside, he better understands what it's like to be in pain. On the downside, when he's in pain he gets as short-tempered as I do when I'm in pain and sometimes that spills over into my appointments with him. But best of all, he puts up with my way over-the-top anxiety about sedation/anesthesia and I know most pain docs would never tolerate such a severe phobia. So I keep with him & most of the time I'm pretty glad I have. :)

If you are written for a Xanex & a half, then take them. Regardless of whether you keep or drop any or all of your doctors, there's no reason to suffer with stress & worry. Do take care of yourself & try to feel better. Maybe take some time do work on one of your paintings. Or write a poem (I always love your poems). Just something low-stress to get your mind off things. It will be okay. I promise. :)


Pamela Neckpain
Veteran Member

Date Joined May 2008
Total Posts : 1821
   Posted 2/12/2009 6:04 AM (GMT -6)   
Hugs back, Frances ...
I'm ok now.
You answered a question that I've had for a long time.
When a doctor tells me I have Fibromyalgia, I just bristle.
I've paid lots and lots of money for MRI's and X'rays
and trips to posh medical centers.
The pain problem CAN be visualized.
I know that I have Fibromyalgia -I've had it for about 20 years.
I know it doesn't require Narcotics.
I used to exercise it away and probably over exercised and caused
other issues later in life.
I want to make good and sure the doctor knows I have problems that
do require opiod therapy.
I want to have an intern for things like flu shots, antibiotics ... like that.
I don't want him to prescribe pain meds. My singing doctor does that:
It's 3 am. Dam n

Frances... yes, I have written some poetry. I don't remember posting
it here. Well, I don't remember much of anything so ....

Veteran Member

Date Joined Nov 2008
Total Posts : 1037
   Posted 2/12/2009 10:03 AM (GMT -6)   
Hey Pamela,
I don't really know that much about Fibro, but I do know it causes extreme pain..Why don't they want to give pain meds for it? If it causes pain, why not give them? Does ur Pain Doc treat that? Or do you see another specialist?

Sorry for all the ??? but I am curious about everything....and you know what they say: | It kills us cats.

We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy
Spinal Fusion
120 mg. Methadone daily
60 mg. Oxycodone daily
Lyrica as needed 


Pamela Neckpain
Veteran Member

Date Joined May 2008
Total Posts : 1821
   Posted 2/12/2009 10:28 AM (GMT -6)   
Hi Me,

There are no outward signs that a person has Fibromyalgia. It's a self report.
Some doctors feel kind of strange giving Opiods for this kind of pain. My pain
doctor doesn't treat for Fibromyalgia. Actually, I don't know if he does or not.

Rhonda, it's real confusing. I've been trying to figure out the Fibromyalgia thing
for years.

Pamela is a cat too! confused

Veteran Member

Date Joined Jul 2007
Total Posts : 554
   Posted 2/12/2009 10:50 AM (GMT -6)   
hey lady....... take a deep breath..... i have fibro too and i understand the joint pain. ask your dr about torrodol (sp?) shots. they aren't anything to get excited about, but they do help to some degree. i think it helps inflammation. first, what are you taking for your fibro? what have you learned about it? i think knowledge is power... ASK your dr for meds if you think you need them. lyrica & cymbalta have been a god-send for me. my PM dr handles my fibro, though i have an apt this week to a neurologist to see if its actually MS. i can imagine the weather isn't helping you either. i know i have been in pain the past 2 weeks, and i am in tampa. we are all here for you.... check out john hopkins website, they have a lot of info on fibro & also check out lyrica & cymbaltas site, they have lit on fibro. ask your dr for samples, they are both expensive meds but to me worth it. hang in there..... ((hugs))
RX's: Oxycontin 80mg 2x's daily; Oxycodone 30mg 5xs daily; Zanaflex 4mg 3x's daily; Restoril 15mg 1x; Soma 3x's daily; Lyrica 100mg 3x's daily (pain & fibro.); Phenergan 25mg (as needed); Amitriptyline 25mg 1x (chronic pain); Cymbalta 60mg 2x's daily (pain from fibro); Abilify 5mgs at bedtime (depression); Metoclopram (as needed) & Senokot (as needed).
"The most critical choice you'll ever make is the one you make about what you're going to do with this. The past is over. The future hasn't happened yet. The only time is now."
- Dr. Phil

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