Posted 2/18/2009 2:36 PM (GMT -6)
I too want to welcome you to Healing Well. I am so glad you found us, I belong on some of the other forums here besides CP. This place has really been a safety net for me over the years. When I first joined it was after an emergency resection due to my crohns disease and I really needed people to talk to that understood the disease. I don't think there are any finer forums than what we have here at Healing Well.
You are right, your surgery did nothing for your fibro, it wouldn't. It sounds like so far you are getting some relief from your surgery. If anything trauma like conditions can aggravate it, which may have happened after your surgery.
My daughter has hemachromatosis. She was in her earlyt 20's when she was diagnosed with it. Her iron levels get way too high and she does phlebotomies every other month. Her dr wants her to do them more often than that but she tells me she just gets too sick. I remember when she was doing them in the beginning and she was going every other week for awhile and it really did take it out of her. Do you have to do phlebotomies? Her dr does yearly sonograms of her liver to watch for any involvement there. She does have arthritis too and some times she really suffers with it. She can now tell when it time to go and do her blood. She has done very well in the diet dept as far as avoiding foods with iron. It can be a very debilitating disease without proper treatment for sure. We feel very lucky that her gi dr is so knowledgable about the disease. He stays in close contact with her PCP and so forth. I have had the DNA testing and I am a carrier but I do not have the disease.
Yes, depression and chronic pain do go hand in hand. I think it would be a rarity to find a CPer without depression. I have had problems with depression long before the CP hit, hwever, it sure seemed to magnify it. I don't know what I would do if it weren't for my chill pills for sure.
Hope to see you more on the forum....Susie