I have done a bad thing, i have been reading some ofyhe post and you scare me to death!!!!!!!!!!!!

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ace lungger
Regular Member

Date Joined Dec 2008
Total Posts : 94
   Posted 2/16/2009 8:43 PM (GMT -6)   
 I been doing some reading on the post, and it seems as the W.C. and the Ins. Co. and pill makers are crooks! But when you guys srtarted talking about the cost on some of the meds, you have put a great fear in me!! I am on the Fentanyl 50mg patch which I was on the 75mg, but was afraid that I wouldn't have anyone to give me scripts I as to go to the 50mg thinking if I got nothing the dt's wouldn't be so bad. Now that they are not paying, what if they won't pay my scripts, I don't have any money.
2 questions:
Which is the best pain meds I can change to when I get a new doc!
And I have to ask this very imortaant question, First off, I love life, I love my wife, and my Son, and I have meet a lot of new good friends!
BUT, How do you deal with it!! I am in pain unless I am a sleep! How do you do it! There is nothing I can do that doesn't kill me!! It seems like I am one a merry go round, most days i don't know what day it is. I am just not been a person to ever sit and do nothing!
 So if there are any of you that are like me, that can't stand to sit still, but because of the pain you can't do anything, please tell me what might help!

Veteran Member

Date Joined Jul 2008
Total Posts : 2317
   Posted 2/16/2009 8:51 PM (GMT -6)   
Methadone is cheap. Maybe you could switch to that. Sometimes you can get it at the clinics for free.

Other than that, I would suggest applying for medicaid so at least you have some insurance. I could give advice about dealing with the w/d's, but don't really have any suggestions for the pain if you don't have any money or coverage for anything at all.
Try pparx.com to find prescription assistance programs. I don't think Duragesic is usually covered. They say Fentora is, but I haven't had any luck with that. It still costs something.

take care,

Veteran Member

Date Joined Nov 2008
Total Posts : 1037
   Posted 2/17/2009 12:10 AM (GMT -6)   
Honey,  We are all scared shocked about the way the govt. is handling pain meds.  We have all been through the ringer with Dr.'s and pharmacies... This is nothing new.
I wonder every month if I will have the money to go to the Dr. and the pharmacy...but if I didn't find the money I would be in trouble...Luckily I have a great family and they make sure I don't go without.  They have seen me in pain and know that it's not an option.
There are many programs for help with meds..just check it out on the web. 
Where there's a will...there's a way.

We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
Hemi Lamenectomy
Spinal Fusion
120 mg. Methadone daily
60 mg. Oxycodone daily
Lyrica as needed 


Pamela Neckpain
Veteran Member

Date Joined May 2008
Total Posts : 1821
   Posted 2/17/2009 5:48 AM (GMT -6)   

Like Frances suggested, Methadone is not expensive. It's effective. My doctor
says it's the best there is for serious pain. (I don't necessarily think so... but my
doctor said that)

You seem to have a strong will to "make it" People like you succeed in what they
attempt. Sometimes you have to work hard but you can do it. Take care of you
and your family.

Post often. We're here to help each other. Right?


Regular Member

Date Joined Sep 2008
Total Posts : 489
   Posted 2/17/2009 5:45 PM (GMT -6)   
Ace I am so sorry that you are going through such a hard time.I use the patch just like you so I can not give you advice on other meds.If you do not have any money coming in can you get help from heath and welfare ???You need to find something to keep your mind busy.I am like you and can not do very much and I use to be a very busy person.The work that I have done in the past has always been very physical and with as large a family as I have I was always busy when I got off of work to.Lucky for me I have always loved to read.So that keeps my mind busy now.I will pray for you that you can find the help that you need.Good luck.
Lost half of my small intestineJan.2008.Ilieostomy for 5 months then reverst in June 2008,Nerve damage to right leg,part of my right hip bone removed Jan. 2008,Cronic pain,hernia,infection in my back called discites,and depression.Gallbladder removed Nov,2008.Surgery to fuse L3 and L4 vertabra Dec. 31,2008.Mother to 9 kids 7 boys 2 girls and 1 stepson.4 grandsons,9 grandaughters.4 of my grandkids I inherited from my twin sister who passed away 6 1/2 years ago from a blood clot after surgery.God has given me my life back after I almost lost it.Even though its a painful and sometimes hard road to walk I take it one step at a time and give thanks to god for every step I take.

Forum Moderator

Date Joined Jan 2005
Total Posts : 9255
   Posted 2/17/2009 7:33 PM (GMT -6)   
Hi ace...and hugs!! (((((ACE)))))

Please try not to worry. It won't change anything. I know, it's easy for me to say but hard not to do. One thing I think you should do is look for some insurance help. I believe all states have a state sponsored health care for those who need it. It goes on a sliding scale down to 0 dollars. Also look into social and health services in your state and maybe try to get aid that way. There IS help for you but you will have to bang loudly on a few doors. I think the first door I would bang on is the Red Cross! Yep! they can help you. Doesn't have to be a tornado or earthquake for them to help someone. You need medical insurance and they can find it for you. I've seen it work many, many times. So tomorrow get on the phone and make a few calls...OK?? Then email your Chutzie buddy and post here to let me and others know how it went. You WILL make it!

Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
Happiness is something to do, someone to love, and something to hope for."

Forum Moderator

Date Joined Feb 2003
Total Posts : 16796
   Posted 2/17/2009 10:35 PM (GMT -6)   
Hi Ace,
Try not to stress until you have to, it will just add to the pain. I read your post and I do not understand why you went from 75 to 50 on the patch. Was the 75 too strong for you or what. From the way you talk the 50 does not take care of the pain-so if that is the case then your pain is being undertreated.
Truthfully, I am surprised you can sleep in the amount of pain you say you are in. Most of us are sleep deprived because of pain. Is it your patches making you sleepy or what?  No, its not good to just lay in a bed all the time. You lose strength and muscle tone which is not going to help your skeletal problems at all. Is your dr aware of all you do is lay and sleep? If not then, you need to be upfront and honest with the dr. The purpose of pain management is to get the pain level down, help people become mobile and able to have some quality life. Nne of us will ever be pain free, the only way any of us will be pain free is if our drs were to make zombies out of us with pain meds and thats not going to happen. Somewhere along the line with you, you need to be able to get up out of the bed and be moving around. This is not living and its has to be very hard on your wife and your son. You really need to be upfront with your dr about this.
It may be time for you to come off the patches since they don't appear to be working for you. Maybe a long acting and BT medication would be more of a benefit to you. You really need to discuss this with your dr.....Susie

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