Posted 3/6/2009 4:19 AM (GMT -6)
Looong time no see! I haven't been feelin too good these past years - I think it's been a little over a year since the last time I was here , before that I came on daily for around 3 years. Well I'm back :).
Just to update people: hi ! My names kim , in 22 and since I was 13 I've had bad endometriosis , about 4 years ago I got a strange attack of dizzyness etc... And have been home bound ever since. 2 years ago I found out that dizzyness was Mitrial Vaulve syndrome, in the past 4 years I've been in very bad pain from excruciating endometriosis, and in course medicated out of this world, asthma, really rare gallbladder gallstones thatget cought in my common bile duct, which I got surgery on to remouve and IBS. I think I've had about 10 surgery in these past 4 years but I remain positive.
about a year ago my endo. Specialists said I should try useing a muirina iud to treat the endo. ( I have been on one hormone treatment after another since I was 13, none that worked but made me throw updaily and fed the ever growing (biopsy confirmed) endo. about 2 years ago my doc said I should try an iud and put me on the surgery wait list~ At the same I was waiting for the surgery to put the iud in (my doc said I would have endo related pain that would be excruciating if I were awake for it) I finally got into the very well known and respected St.pauls pain clinic who I waited like 2 years to get into , I told the man I was in pain everyday and I just keep getting more tolerence and more and more and so he knew I was taking Percocets and then sepudol which are perc's without tylonal ~ the guy at the pain clinic put me on oxycontin which is a slow release non-tylonal percocet.
He started me on 30mgs 2 times a day which was heavy but I was taking near similard doseage, but a bit less before - this med is very heavy and makes u very out of it but for the first time since I could remember I wasnt in pain! 6 months later or so I got the iud put in and it went surprisingly easy , so now it's been about a year and a half and haven't had a second of endo pain.
Thoe the pain pills have made me have extreme anxiety, virtigo, hyper sensetive sences - going outside or yelling is excruciating, I have also had hard times concentrating etc....etc...
So anyways... Now that i've not had pain for so long I'm ready to get off my pain meds ~ i'm currently taking 25 mg (slow release oxycontin) in the AM and 30mg (slow release oxycontin) in the PM. As well as 1- 10mg sepudol (normal release) 2 times a day (morning and night)
I went to my doc said it's time and I'm ready and I did a test run last October , it was painful but was ok. ( that's why the AM one is 25 mgs)
So between me an my doc we made a reduction plan:
every month reduce 1~ 5mg. No more than that 5mg pill every month and total it'll take about 10months.
I've found so far (I started Saturday but also based on Octobers trial run that if I go one day (first day) don't take it , next day take it, then the next day after that take it , then don't take it, thentake it, then don't (that's where I am now -day 6- First month- I seem to have very minor withdrawl , but it's early it may get worse,
The reason me an my doc decided to do it like this is because of my heart condition, because it's a slow release med , because I've basically been laying in bed for 4years , and I'm weak and do not want to be on methidone etc...
And the most important reason is that I may go 6 months and my pain will come back , so I just want to get as low as possible with mg's - hopefully I can totally get off it all
I am back here to offer hope to all those with endo and chronic pain, I've been on every medication, hormone etc. Multiple surgerys and I almost lost hope.
This site helped me get through the tough times and hopeless nights
I hope u all can stick with me through the next year and see what happens.
If anyones got any similar stories, advise about general med withdrawl weather it's at home or detox facilitys I'd love to get as much info as possible, as well as any encouraging words etc....
Oh and FYI I'm writing this one the Internet of my iPhone and it had a self editor so if some words don't fit that's why g