Palady, White Beard, Pete, Frances, & Char,
Thank you so much for all the hugs & support!! I'm trying my best NOT to think about
this, as it really really terrifies me, thinking that something really bad might be going on in my brain. Despite my best efforts, it has been weighing down the back of my mind all day. I've just got to keep reminding myself that we don't know anything yet & that at least the rest of my neuro exam yesterday was normal & my MRI 2 mo ago didn't show anything horrific in my brain, although that's not to say that things haven't changed, as this is new since then. I don't think there is much more we can do or so for now, just give it time. I see my ophthalmologist again in another month & we'll go from there. My guess is that assuming this thing doesn't get spontaneously better within the next month (hey, I can always hope & dream!), the next step will be to go back & see another neuro-ophthalmologist. I'm just confused, since everything up until now appeared to have been the result of the injury, but now it is sounding more like a systemic thing. I did ask my doc about
it & he said that it could very well be that I have something systemic that we may not have noticed for a while down the road & the injury, because it severely weakened my eye, just kinda gave it a window to attack. It is always possible that the two things are not related, although that doesn't seem likely. I'm thinking more like Pete & Palady, that this is just another piece of the puzzle.
At least I'm accustomed to waiting (although it doesn't make it any easier, or less frustrating). Two plus years and counting without any real answers. I sure hope you're right Palady & I am going to get some kind of an answer out of this!
Char, we never have tried IV antibiotics. We've done oral & ophthalmic antibiotics, but never IV. Lyme disease is another possibly differential, and I have had it multiple times before (and supposedly it never really leaves your body, just lies dormant), but I have been tested for that I can't tell you how many times since since this all started & every time I have been negative. In addition I've been on several rounds of doxycycline, which is also used to treat Lyme disease. I'm not sure if he thinks that this thing could possibly be bacterial, but it might be worth asking him about
open to just about
anything. Good luck with your neurologist's appointment! I was shocked that I was seen yesterday! I never expected, nor asked to been seen then, I just wanted to make an appointment for a later date! The receptionist was the one that volunteered to check with the doc to try to fit me in later in the week! I was shocked to see the doc come out & usher me in!
Thanks again for all you support! I don't know where I'd be without you guys! Hugs to all!
Post Edited (skeye) : 3/12/2009 8:50:45 PM (GMT-6)