Well as angry these "people" make us, we must remember that they have a disease. The disease of addiction needs more attention, cause it's the fact that we ignore them is what makes it so hard for these people to get help. Like in my city, we have been fighting for a methadone clinic for the past 10 years. 2 years we ago we had a place bought, and the doors where about
opened when the bussinisses around it decided that it would bring the homeless and **********s and gang activity around (gansters sell, not use), when in fact, we have barely any of those people living here, and why cant we have security guards like the other methadone clinics have. So people here have to drive an hour and half to the nearest clinic, and their rules are that you have to go for 90 days straight before you get any take homes, and that is just plain impossible, especially if you have no car, or you have children, and have to find a babysitter, and did I mention that you have to be there at like 6am in the morning. And we have no Suboxone doctor here either (I live in as city of mostly upper class cause we have Hanford here) and nobody wants any drug treatment centers here. So my town is filled of addicts who wants help, but cant get any. and I know this because I tried so hard to find help for a friend, and their was absoutly nothing but counciling, but she needed to detox first, and with no insurance, there is just nothing around here or even somewhat closeby. Actually I have a good friend that was a high school teacher, who has a great life, big house, fancy car, but is in the middle of opiate addiction, and even with her nice insurance, she cant get any help either, so she doesnt work anymore right now cause of her addiction, and it has ruin her and her family's life. This is a huge reason why I wanna work so badly with addicts, and I wanna get the message out there about
the lack of any treatment, and I live in a pretty big town, thiers absoutly no reason why we cant have treatment centers. And if these people got off their highhorse, and actually
opened their eyes and see what a huge problem it is here (and just about
everywhere else), and know that methadone clinics dont always bring homeless criminals around, but actually bring in people that are just like them, that live lifes just like them, hold jobs like them, you would never know they where addicts. And until we start helping them, we are going to continue being treated like them. So if ever you see a town meeting where they're trying to stop the
opening of a clinic or treatmet center, please go and advocate for them, or write letters to the congess and others like them. I hope you all dont get mad at me, but please try and understand what I'm trying to say, cause the more we turn our heads to the addicts and just get angry, the it will just make our lives that much harder. And you must understand that an addict's brain cant understand what they are doing to us in pain, cause their brains just thinks about
them and their drugs and not anyone else, it is a disease, and they need help BIG time.
26 year old Female , single mother of 2 kids, on SSI for migraines, pain, pancreas issues
All the things broken with me: Migraines, Fibromyalgia, Chronic lower back pain that causes severe pain/numbness/tingling especially to my left leg, Genetic Pancreatic Divisum that causes chronic pancreatitas, Asthma, Depression w/Anxiety/panic attacks
Prescription Meds:Suboxone 24mgs daily, Cymbalta 60mg nightly, Lyrica 50mgs nightly, Imitrex as needed, Ibprofen 800 twice daily, Zanaflex as needed, Ventolin as needed for asthma attacks, Advair twice daily
Over the conter meds: Benadryl nightly for itching due to meds (not sure which one yet),
Surgeries: Gallbladder removed at 15 years old, 2 ERCPs, stent put in pancreas, countless upper GI scopes, Bartholin gland opened permanetly due to recurring painful cysts
Goals: to go to college next fall to be a nurse and get off of SSI
Wishful thinking: to not be in pain!!!
Posted 3/22/2009 9:45 PM (GMT -7)
Char, Maybe I will look for a job selling those little umbrellas for drinks. I know on our virtual thread we seem to go through alot of them. I know that I work in a controversial field. When you add to it that it is a faith based program that is based on donations, it can take on a whole different view. When I go out and speak about what we do, people are amazed because almost everyperson knows of someone who is either directly or indirectly effected by addiction. If our staffing level was where it needed to be it would be better, But in order for the staffing level to change the income needs to change. Looking at financial issues in this economy is overwhelming. What a vicious cycle.
Kello~Kitty, You are so right about trying to open clinicks or treatment centers. People know we need them but the attitude is "but not in my community." I have stories that I could tell about opposition to our program as well as others connected to it. I have been very careful not to divulge the name of the recovery services program that I am working with (not a small organization) and we are trying to open new centers all the time. My job is to help train staff for them. Unfortuantely, there is job security in this business. The economy we are in does not help as people want to escape and many times they do it through drugs and alcohol. That effects us with CP because in some peoples minds we are an extention of those who are identified as addicts. Addicts use drugs so people that use drugs are addicts. For some it is a compelling argument but not a true argument. It is even prevelent in the program I work in. Not everyone in our program (my superiors) like the idea that I am on medication for CP. Now that my PMS is looking towards putting me on methadone, if that gets out, my job could be at risk. If they ask me I can't lie. So please no one tell them. (joking of course). I hope you find the satisfaction you are hoping for in this field. It can be very rewarding and also very draining. Thanks for your post.
Posted 3/25/2009 12:04 PM (GMT -7)
I fully understand the abuse of the system.
My father! He has medical issues but since my mother died he has went out of control. Hes 70. He was getting pain medication for the VA and a PM doc at the same time. The VA found out and cut him off. But he still sees his PM doc. He gets 150 30mg morphine tabs and turns around and sells them 20 dollars a pop!
Here I sit with many medical issues. My referals to a PM (2 one from a Nepherologist and one from my PCP) I am taking lortab 10's 3 times a day to get by on until I see a PM doctor. I have struggled to get this referal. All my dad did was walk into the clinic (he took a friend to his appt.) tell the doc hes been buying off the street and he took him on as a patient. When my dad runs short from selling them he comes to me. I always tell him I can't. I really can't if I give any to him I will be short and cause me pain.
He receives 1500 a month is social security (mainly my mothers after her death). He gets free medical care. I on the other hand have to pay 20 dollar co-pay and 15 or 25 for prescriptions. (I take 19 medications a day) I'm afraid I can't even go to the PCP for my refill on pain medication because payday is not until Friday. Our household income is suffering do to cut back in hours at both our works. But my dad seems to just float through the system without any concerns.
So I understand!
Posted 3/25/2009 12:10 PM (GMT -7)
I posted a similar thread a few months ago and got such a response...Some of it I did not expect... This is a touchy subject for CPer's. We aren't addicts but are treated as such. I had to force myself out of that mindset and I am so glad that I did. I now have a better self-image and don't let what others think get to me like I used to.
If it wasn't for this Forum I couldn't have done it. So, thanks everybody...
We are all in the same boat...unfortunatley it seems like it's sinking...
Post Lamenectomy Syndrome
120 mg. Methadone daily
60 mg. Oxycodone daily
Lyrica as needed
Metformin 500 mg. once daily
Posted 3/25/2009 12:18 PM (GMT -7)
Isn't that typical! Sure doesn't seem right does it?
Good Luck to You
I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!
Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)
Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV
Posted 3/25/2009 2:17 PM (GMT -7)
Most people don't understand that there is a difference between addiction and dependence. I was told that if I said I was addicted to my pain meds that I would get disability a lot faster. Knowing that I am going to need pain meds the rest of my life I didn't want to be labeled as an addict so I am still waiting.
People that don't deal with CP have no clue what we go thru. They have no clue how bad we feel when we have to go to our doctors and say I need more, this isn't working. I know the few times I have gotten up the nerve to ask for something different I feel like they are looking down on me so most times I keep my mouth shut. My original ortho, in Alabama, is the only one that never made me feel bad for asking for more. Sadly, because of laws, since I haven't actually been to see him in X amount of time he cannot call anything in across state lines ( I live in Tennessee ) so I have to deal with the looks and head shaking of my local PCP when I need help. I really hate feeling like I do when I have to ask for something. It makes me feel like they are going to think I am an addict when I just need a little more help.
Motorcycle wreck 08/2004: 119 fx, 13 surgeries with more to go, including 5 bone grafts, 2 skin grafts, pelvic reconstruction x2. Right leg is 1.5" shorter than left. Have to wear knee brace for life and also AFO brace for drop foot. Nerve damage from hip down to toes, nerve pain in lower leg. Spinal fusion. Will be on crutches the rest of my life. Pain level never below 5 even on pain meds. Since August 2007 I have been diagnosed with chronic atelactesis, tachycardia, high blood pressure, borderline personality disorder, depression and Delayed sleep phase syndrome
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