This is the first time that I am writing a post that isn't a reply to what someone else has written, but I need some encouragement today. I have been struggling with CP for 13 1/2 years due to car accident, and my pain is normally an 8 - 9 every day. Once in while I will get blessed with a 7, but that is rare, and a couple of days out of the month I hit a 10 which is where I have been for about
a week now.
I don't have the strength today to get to detailed, but my pain starts in my low back and radiates down both legs, and radiates up my back as well. I travel 2 1/2 hours each way to see my PMS, and we have exhausted every form of treatment available. I currently have an intrathecal pump that gives me 18 mg of dilaudid and 13.5 mg of bupbivicaine per day into my spinal canal. In addition I take 60 mg of roxicodone 5x's a day, 20 mg of flexiril 3x's a day, and Klonipin 1mg 2x's a day.
I also have a spinal cord stimulator, which needs a battery replacement so it is not working as it should right now, which even when working at full capacity only gives minimal relief. I am scheduled for surgery to replace the battery next week.
Anyway, as I said, my pain level has been at a 10 for about
a week now and I feel like I am reaching the end of my rope. My husband and my kids try to be as supportive as they can, but they too just don't know what to do or say anymore so they pretty much just to ignore it, and I try very hard not to burden them with it, but today I am really in a bad way.
Usually when it gets this bad, I wind up getting admitted to the hospital for a few days, and that may happen by the end of the day, but I am trying not to go that route because it is such a drain on my whole family. So, I am just desperate for some encouraging words.
Thank you in advance,
Post Edited By Moderator (Lynnwood) : 3/25/2009 2:02:05 PM (GMT-6)