Posted 3/29/2009 10:33 PM (GMT -7)
There is also the possibilty of rebounding from opiods (I forgot the real name for it), it's basically your brain convincing you're in more pain then there really is just so you feed it more narcotics. And they find that quite a good portion of people taking pain meds for pain suffer from this, more then half. the only way to find out if you have this is to stop pain meds all together for a period of time, which is what I'm suppose to be doing, and will do, cause my tolerence kept getting higher and higher with no pain releif at all. Well just a thought. Not saying that this is your problem, just naming a possiblity, and when I thought alot about this, it made alot of sense, cause I was taking 60mg of methadone 3 times a day with absoutly no pain releif, and refused to go up and decided that this whole bussiness was stupid, I should of been dead from all the methadone I was taking, but instead I couldnt sleep or eat or do anything because of the pain.

-hellokitty
26 year old Female , single mother of 2 kids, on SSI for migraines, pain, pancreas issues
All the things broken with me: Migraines, Fibromyalgia, Chronic lower back pain that causes severe pain/numbness/tingling especially to my left leg,Arthiritis in my back, Genetic Pancreatic Divisum that causes chronic pancreatitas, Asthma, Depression w/Anxiety/panic attacks, Bipolar
Prescription Meds:Suboxone 24mgs daily, Cymbalta 60mg nightly, Lyrica 50mgs nightly, Imitrex as needed, Ibprofen 800 twice daily, Zanaflex as needed, Ventolin as needed for asthma attacks, Advair twice daily
Over the counter meds: Benadryl nightly for itching due to meds (not sure which one yet),
Surgeries: Gallbladder removed at 15 years old, 2 ERCPs, stent put in pancreas, countless upper GI scopes, Bartholin gland opened permanetly due to recurring painful cysts
Goals: to go to college next fall to be a nurse and get off of SSI, would love to work in a inpatient rehab center for drug addicts
Wishful thinking: to not be in pain!!!

Posted 3/29/2009 10:52 PM (GMT -7)
Tony McGuire,

I took my usual four Methadone and as you know I put the Morphine IR on top of it.
That was four hours ago. I went shopping and enjoyed the canned music even!
I bought some good looking food and felt hungry for it. I was happy and normal.
That was ONE time. I'll have to see if it continues to do the job for me. I'm thinking
I am undermedicated OR the Morphine causes a synergy. I didn't go outside what
my prescription allows. I'll talk to my pain doctor tomorrow.
So to you people who don't take your medicine because you're afraid, don't do that!
You could just be causing yourself problems. Apparently I did.

I have some more I want to say to people and will be back asap.

Pamela

Tonight for dinner it's spinach salad with feta cheese and glazed walnuts. Also
golden squash with butter and brown sugar. Also, Tapioca with whip cream for desert! yeah
I'm hungry for the first time in a very long time.
Posted 3/30/2009 12:20 AM (GMT -7)
Pamela,

WOW! I'm so sorry I went to bed and wasn't up to 'celebrate' with you your medical miracle. It sounds like you've discovered at least a partial fix to your overall pain issues. I'm so VERY happy for you if it turns out like it is sounding like it is going to turn out.

By the way, your fear...did you mean that you didn't think it sounded right to put morphine on top of methadone - because of the type of drugs they are? Cause that was a fear I had when they were first prescribed. I was afraid that the morphine would cause an overdose of the methadone - and almost didn't take them. Just wanted to clear that up.

(Well, the Tapioca sounds *wonderful*. skull )

(Edit: added 'd' to be for bed)
Wife: Liz
Dogs: Koshka & Chomp

Post Edited (TonyMcGuire) : 3/30/2009 1:42:19 AM (GMT-6)

Posted 3/30/2009 12:21 AM (GMT -7)
You said your pain was from bone spurs if I am not mistaken. That is a totally different type of pain. I also have bone spurs as a result of osteo-arthritis. Bone spurs are actually very sharp calcium deposits on your bone joints that protrude and physically cut into the surrounding tissue. They cause ongoing injury and inflammation. I am not sure you are going to find a narcotic that covers this type on ongoing trauma. My orthopod finally recommended the surgical removal of the spurs and fusion of the affected joint. Pain meds rarely cover the type of pain that results from something (e.g. a bone spur) literally poking and cutting tissue every time you move. I was pain free after the surgery. There are times when you have to evaluate surgical options to help reduce or eliminate a defect that is causing ongoing trauma. Have you been evaluated for possible surgical intervention? Stella Marie Rare neurodegenerative disease called “Multiple System Atrophy”.   Wheelchair, O 2, & Bipap, intrathecal pump, neurostimulator, dystonia, neuropathic pain,  spasticity...etc..etc.
Posted 3/30/2009 12:25 AM (GMT -7)
~HelloKitty: "..even if that means losing my eyesight to the lyrica."

Is potential loss of eyesight one of the side effects of Lyrica? I don't think I had heard that before...
Wife: Liz
Dogs: Koshka & Chomp

Posted 3/30/2009 1:12 AM (GMT -7)
Pamela: "When I get panicky about my pain, I take 1 mg. Xanax "

What's to be panicky about your pain?

Seems to me it is the LAST thing to be panicky over. It will always be there, following you around like a little puppy. ALWAYS dependable. And if for some reason it ISN'T there, that is a reason to celebrate.

So, I'd say the last thing to be panicky over.
Wife: Liz
Dogs: Koshka & Chomp

Posted 3/30/2009 1:38 AM (GMT -7)
Pete,

I did wonder how things went for you afterward. Now I know. : - /

I believe you are fortunate that your pain doctor knew that Methadone would kill
you at that certain point after surgery. Sheesh!

I don't think my pain doctor would know that. I don't think he knows much of anything
about Methadone. Another doctor prescribed it to me and then we moved and I
had to change doctors. Methadone is probably why they couldn't sedate me when they
put me in the MRI. I kinda doubted that they had anything in those IV's, but now
I believe they did and I just couldn't feel it.

In some ways we're like pioneers in the Chronic Pain history. I don't know the
story of Methadone but I do know it hasn't been used for pain for so very many
years.

Unfortunately I don't have a good pharmacist anymore. Those are the people who
should know the story. I don't think I'll have to have surgery now - but I dunno.
I'll find out tomorrow.

It's very good to have you back where you belong. I'm kinda glad you're gonna
hang out with us even though your pain is lighter.

When I was giving birth, there was a woman in the next room screaming her head
off. It was distracting. It was just plain rude. I asked the nurses to tell the lady
to be quiet. "It's you who is screaming," they said. Geeze. They gave me the stuff
that makes you forget pain.

So if you forget pain do you really feel it.

Thanks for the post, Pal Pete. From Pamela :-)
Posted 3/30/2009 2:03 AM (GMT -7)
Hello~Kitty,
It's good to know about Suboxone. That one's really new, I think. Maybe medical
science is catching up just a little? I hope you can accomplish your goals. I'll bet
you can.
I don't know if I have that rebound thing. I need to find out. I sure could have it.
Try to find out the real name for that rebounding thing. OK?

StrayDog/Susie
I've always had the Morphine. I've tried it and it didn't do anything. Apparently, it
has to be mixed with Methadone. We'll see. Maybe it was just beginners luck.

White Beard,
I didn't go to the hospital to get my one MRI. Fear, you know. I will see the doctor
tomorrow. I take Celexa. It hasn't seemed to help.

Tony,
The spinach salad was wonderful. All those good vitamins. Oh yummmmm.
I ate candy while I was in the store. A lot. When I got home I wanted something
healthful.
Yes. I thought the morphine would cause an overdose.

Stella Marie,
You have a pretty name. I'm going to suggest Stella as a name for my grandaughter
who is due on June 3.
The doctors have told me all along that i have bone spurs. It does feel like cutting.
That sounds bad.
I will be evaluating my surgical options. That's for sure.
Posted 3/30/2009 5:53 AM (GMT -7)
 
 
Hey Pamela,
My methadone friend...ha ha
 
I was first told to take my methadone like you are...40/40/40.  Then when I told my Dr. that it wasn't working as well as it had in the past she told me to take it 60/60...what a difference it makes.  Of course, since then I have hit a plateau.  But it did work for a while.
 
Ask your Dr. about the change.  I also used to take all 120 mg. at once for about 6 months.  That was strange to say the least.  Now it's better.
 
I hope you eventually find a combination that works for you...What is the diff between Morphine IR and Oxycodone 15 mg.?  I'm wondering if I should ask to try something else.
 
Me.

 
We are all in the same boat...unfortunatley it seems like it's sinking...
 
Rhonda
Post Lamenectomy Syndrome
Hemi Lamenectomy
Spinal Fusion
 
120 mg. Methadone daily
60 mg. Oxycodone daily
Lyrica as needed 
 
Type 2Diabetes 
Metformin 500 mg. once daily
                                                                     

 

Posted 3/30/2009 10:28 AM (GMT -7)
Pamela,
Sorry to hear you are in a lot of pain right now. Opioids didn't work too well for me either until after surgery. Maybe you need to find a hospital where you would feel comfortable with surgery. There are a ton of choices out there & it may be that your hospital doesn't have a good record with infections, idk. That was something that I looked into prior to surgery. Hospitals are required to keep statistics on those kinds of things. They keep records of how many infections in general & then keep separate numbers for MRSA. You can check into that and choose a facility that has a good record. Whenever possible, I choose an outpatient surgical center b/c they tend to have a very, very low rate of infection. I'm not sure if that's possible for what they want to do to treat you (for sure the pump implant can be done at a surgicenter, but I'm not sure about bone spurs -- sometimes they can, sometimes they can't b/c you need to say overnight for observation). I know those things make the news, but they really are pretty rare, especially for patients who are either out-patient or only there for a day. There are new antibiotics available & you will be given an antibiotic as a precaution prior to surgery. By choosing a healthy hospital & keeping your wound clean after release, the odds of infection really are minuscule.

I know you keep worrying about all the things that can go wrong with surgery, but I think you're only other option is to live in horrible pain for the rest of your life. It is a hard place to be. Speaking for myself (& probably most others), I can't imagine anyone picking surgery as their first choice, but Stella is right that some conditions cannot be adequately managed with surgery. Once I had surgery, the opioids helped enough that I could do PT (though with a LOT of pain). After a period of weeks, the PT started to make a difference, my muscles got stronger & now I am cutting back quite a bit on the meds. I cut down by half last month & this month I've already cut down by another quarter. Maybe soon I will be able to just take them occasionally & that's the best possible outcome imaginable! :) I can carry in my groceries, visit with friends, go to church, apply for jobs, go on interviews, go for a short walk around the block -- life really is good.

It just seems like the idea of surgery has been a fear of yours for a long time. Perhaps a pain psychologist could help you with the decision. I just hate to see you keep being in this tug-of-war where you don't ever get to a place where you find relief. I wish there was something I could do, but I'm not sure what you need. Sometimes I wonder if maybe you're looking for someone to affirm your belief that surgery is horrible, dangerous & to be avoided at all costs. Personally, I can't do that for you, but if that's what you need maybe you could ask for people to share their bad stories about infections or such. Perhaps there are others out there who could offer you reasons not to go through with the surgery.

best wishes,
frances
Posted 3/30/2009 12:07 PM (GMT -7)
Pam-so glad to hear that the Morphine kicked in for you. That may be your right combination. Do you feel foolish now that you had that there all along and refused to take it and now you see the difference it has made? Makes you want to kick yourself for sitting there being miserable all this time. I did that one time back when I was on orals and one time only. I felt to stupid afterwards too. That was back in the beginning of the world of opioids. After that I said I would educate myself. I would fiind someone that could answer my questions if I had doubts.
 
Tony I don't know who or where you got any info on a pump but you are dead wrong. You have no wires sticking out anywhere. Where in the world did you get that idea? The pump is inplanted in your body and after a few months you don't even realize its there. I can tell you first hand, the pump beats the oral pill world all to hell. No having to have someone dole out your meds to you, no clock watching, you have a continuous flow of pain meds just like an iv only its internal. There are no high no lows, its awesome. But, you must have an educated dr in pain pumps. I have a new one because the former closed his practice. Wow, this new dr is incredible. She increased my medications and we are still increasing them as needed. She told me she would give me my life back, it may be a little different than the original one but she will have me out there running again with the best of them. I believe her, I already know what a dfference she has made in my life. I have only been with this dr since the end of Jan. and she has done more for me than the former dr did in 5 years. My former dr was not educated enough in pumps or the medications that go in them.
 
As for the infections that arise in pumps. Believe or not, its the drs fault for these happening as a rule. Two things that can cause this problem, using the wrong medication in the pump, not just any medication can be used in a pump and having a person on an excessively high dose. Those are your tw major culprits. There is again, it all boils down to having an educated dr. 
 
Am I glad I have a pump you bet I am. I cannot imagine living the way I was on pills. Is the pump for everyone, NO.
 
Stella Marie hit it right on the head about bone spurs, all the medication in the world will not take that pain away. Susie

Posted 3/30/2009 12:11 PM (GMT -7)
Uniquelyme: Do you mean that you take your pills twice a day instead of taking
them three times a day?
I'm taking mine WITH the prescribed Morphine. It's doing good. So far ...
We've got to become experts in Methadone. One of us could have a surgery. This
is a big big worry of mine.
Methadone is a strange medicine. As I find out interesting stuff, I'll let you know.
Sometimes I don't think there's a whole lot known about it - not compared with
other opiods

Pamela

frances,I think you ARE a pain psychologist. I'm thinking about what you said.
My husband is the one who had the serious infection after surgery.
I don't need to know about anyone else. (That's just a little defense of mine.)

The hospital that I'd have to go to for a real surgery has been written up in the
paper for quite some time for being high in infections.

You made good sense. That's for sure. Now I've just gotta stop these knees from
knockin' so loud that I can't hear what the doctor says.

Pam smhair

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