It's been awhile since I last updated anything on me so here goes. I have CES, after my first fusion surgery, I developed it as a post op complication. My surgeon unfortunately for me, missed it....calling it post op swelling....Anyway, after 17 months, I finally found out what was causing my ongoing deterioration, and my bladder and bowel issues. I was NOT a happy camper, as you can imagine, especially since I had been telling my surgeon that something was seriously wrong, and it wasn't post op swelling.
I wound up having to have a revision of the fusion since it never did fuse, along with having to have two other levels decompressed as well ( L3-4 and L5-S1) original site of fusion was L4-5..to try to save what was left of my ability to walk, sit and stand up for any length of time. I still can't stand on my own for more than 5 minutes without my legs giving out. It was a mess in there, and my 2nd surgeon also discovered that I have arachnoiditis on top of the CES, and the nerves at L5-S1 were like tissue paper...no hope of recovering any of those nerves.
Anyway, I was prescribed a motorized wheelchair, a manual one as well and a scooter to help me get around, and to add to my ever declining ability to get around.
I have been relegated to PM , like everyone else and it has been a battle to find meds that work okay....not great, but okay. They at least , on most days allow me to get out of bed , and sit around my house, but not a whole lot more than that. My PM is a good guy and he does try to help. Anyway, to get to my latest news....at my appointment last month, my hips are really painful on top of the back and nerve pain....I was having one of those days where my ability to walk was not at it's best and I was literally taking baby steps to get anywhere because my legs just wouldn't cooperate that day. When I tried to stand up, my legs repeatedly gave out, almost knocking my poor PM over right along with me. I usually am able to just lean up against something for a few minutes until it passes (whatever it is) and then stand and walk......not that day. Each time I tried to stand up or take a step, I nearly fell over, and almost knocked the PM over . I was getting scared because normally, it is bad, but not quite as bad as it was that day. My PM was worried, went and got their wheelchair since I didn't bring mine that day, and he told me that I was to use my wheelchair or my walker, but not my 5 prong cane , he was sending me for a new MRI and he increased my pain meds ......I could tell he was worried...I don't think I've ever seen that look before.
Anyway, I am now waiting to get the new MRI....I am a little worried about what else might be going wrong now....It took two and a half weeks to get the approval from my insurance for the MRI, but we finally got it....
I hope that it is just an exacerbation of my normal problems, but don't really think so.....my decline continues , some days are worse than others but I am finding that if I try to increase my walking , my legs just won't work....they won't hold me up and they won't make the steps that I want them to make....so who knows.....anyway, I read every day, and post when I think that I might be able to help someone else......
I figured it was time to catch up with what's been going on with me.....I hope to get the MRI done sometime this week or early next week. My PM wants to see me as soon as the MRI is done....which means that he wants the report asap....I hope it's not bad news. I don't want to have to go down the surgery route again........my first two trips down that road have not turned out well....
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.