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Regular Member

Date Joined Nov 2006
Total Posts : 491
   Posted 3/31/2009 7:04 PM (GMT -6)   
Does anyone here have experience with pancreatitis? I have had upper left sided pain and some centered burning for over a month now. My lipase was just slightly elevated for a couple wks (just re took it so will get new results this wk) and ca 19 (which is a tumor marker for pancancer-however, pancreatitis and other things can cause an elevation)
I am terrified as my dad died of pancancer, and I am scared I have it. I had an ab US, EUS and CT (though Ct was in er so not sure how well it was read)-all clear.
Any feedback on this appreciated...
34 yr old female/GERD dx 3/07/Migraines with Aura/IBS
SYMPTOMS  migratory joint/bone pain, extreme joint cracking, feet buzzing/vibrating, right eye pain,mid spine soreness (like a constant bruise) fatigue and dizzy spells, bumps and indents on nails. 
New as of Aug-muscle twitching throughout my bod NONSTOP DAILY EVERYWHERE. 
 TESTS-BloodCBC,ANA,Sed rate,Lupus,RA, Vit D,Anti nuc,Calcium.TSH T3 -Too many to list -all CLEAR
 Scans/xraysUltra sound of stomach organs,Sig/colonoscopy (mid way through),MRI of head and spine, full body bone scan-ALL CLEAR

Forum Moderator

Date Joined Jan 2005
Total Posts : 9255
   Posted 4/1/2009 11:22 PM (GMT -6)   
Hi king!

I am so sorry this is causing you misery. I don't have any experience with this but I do want you to know that someone out here cares! Try not to expect problems if the tests come back clear. I know it's easy for me to say...I have not lived your life...but worry will only make it worse. Wait for the newest results and please let us know how it comes out..OK??

Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, PTSD, dermatitis herpetiformus, osteoarthritis and a few other side dishes.
Happiness is something to do, someone to love, and something to hope for."

Veteran Member

Date Joined Jun 2005
Total Posts : 610
   Posted 4/2/2009 12:31 AM (GMT -6)   
Have you had an ERCP?? if not, then you should ask for one (Of course from a GI doctor), ERCPs are like upper scopes but the camera is much much smaller and they can actually put in through the ducts of your pancreas and see whats going on. I've had 2, the first one they diagnosed the pancreatic divisum, just like a scope, you go home afterwards. But with my 2nd one they where just gonna do the same simple procedure, but the doctor decided half way through, to call up my father and get permission to do minor surgery, and he put a stent in my pancreas. Also I was diagnosed with Pancreatic Divisum, which is something your born with that 10% of the population has, but only a very few ever have issues with it, which of course includes pancreatitas, but also can cause severe pain. Also remember that quite often you can still have pancreatitas even if your blood tests come back normal, actually it's very common, I've had that happen countless times to me. And also scans wont always pick up whats going on with your pancreas, they did a MRI of my stomach, and said my pancreas look normal, but they didnt find my problem til they did the ERCP. So if I where you, I wouldnt count too much on blood tests because you could still have pancreatitas, but you wont know whats going on til they actually go and look inside. Are you sure it's not your gallbladder (if you still have one) thats having problems and may have passed a stone that got stuck in the pancreas and caused it to flare?? Because that is also something that happens alot. And gallstones and pancreatitas feels exactly the same to me, so thats something else to look into to, and they can diagnose that with an ultrasound. Well no matter what, I hope you get it figured out, because I know how much pain your in, and I really feel so sorry for you, cause that hurts like crazy, maybe the worst thing I have ever felt. Also you should defiently get a Gastro Doctor if you dont have one yet because they specialize in just those type of things.

26 year old Female , single mother of 2 kids, on SSI for migraines, pain, pancreas issues
All the things broken with me: Migraines, Fibromyalgia, Chronic lower back pain that causes severe pain/numbness/tingling especially to my left leg,Arthiritis in my back, Genetic Pancreatic Divisum that causes chronic pancreatitas, Asthma, Depression w/Anxiety/panic attacks, Bipolar
Prescription Meds:Suboxone 24mgs daily, Cymbalta 60mg nightly, Lyrica 50mgs nightly, Imitrex as needed, Ibprofen 800 twice daily, Zanaflex as needed, Ventolin as needed for asthma attacks, Advair twice daily
Over the counter meds: Benadryl nightly for itching due to meds (not sure which one yet),
Surgeries: Gallbladder removed at 15 years old, 2 ERCPs, stent put in pancreas, countless upper GI scopes, marsupilized bartholin gland cyst
Goals: to go to college next fall to be a nurse and get off of SSI, would love to work in a inpatient rehab center for drug addicts
Wishful thinking: to not be in pain!!!

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