Pamela & kttn251977
This new neurologist I have when I seen him the end of December, he done a thorough exam the first thing he did was he had me sit down in a chair with my arm and hands at my sides and then he sat down right in front of me knees to knees and he put his hands palms down on my thighs and just quietly ( he told me to relax and no talking or movement) sat there for several minutes, then he did the same thing with his hands on my arms, then he started the regular exam. He told me that I vibrate, he said that my muscles are constantly twitching or vibrating! OK ??? he also said he didn't think I had Parkinsons and he sent me to the Rush movement disorder clinic in Chicago, they specialize in Parkinsons and they agreed they don't think I have it either and I have been weaned off of the Senemet and Lodosyn that I had been taking 4 times a day for the past two years! This wasn't the only thing my old neurologist was wrong about! He had also screwed up on my Sleep Apnea treatment! But that is another story! That neurologist is nolonger my Doctor!
Anyway, I have balance problems, and swallowing problems, along with losing some movements, I will get periods when I will have a bunch of wierd symptoms, numbness and tingling in my extremitities and balance and walking problems and also swallowing difficulities, and some other things, they will last from days to sometimes weeks and then they will go away, ( but they always come back, some times weeks later other times months later or longer) but when they go away I will often be left with a deficit, of some type, as an example I can nolonger hold my arms straight out in front of me with my palms up, in fact I cant hold my arm straight out at all. I used to love doing sculpture, I cant do it any more because I can't hold my arms out to do the work! Also I get spasms, I get them in my hands, in my feet I get them everywhere, the insides of my thighs is a killer! That is why I take 25mg of Baclofen every 8 hours to keep the spasms under control! And of course the pain. When I have a bout with these symptoms, my pain increases unbelievably!
When I went to the ER a couple of weeks ago and they thought it was my kidneys, the test came back negative and they then said it was probably my back, but during this time I have also been having intense numbness an tingling in my feet, and swallowing and gagging problems and some of the other symptoms I get, and my pain in my back has been unreal, I have been taking allot more percocet for break through. Is it all connected or related???? I don't know, but the symptoms are starting to go away!
A number of years ago (8 or 9 maybe more) I had a MRI of my brain, the MRI folks said I had possibly had some mini strokes my nero psyc Doctor said the same, but my neurologist at that time said he didn't agree! But he said he didn't know what those three spots were, but he was sure they were not important! I found out a week or so ago from Gretchen the moderator over on the MS forum that they told her that the spots on her first MRI was also mini strokes but it really was MS, now I am not saying that, that is what mine is, but it does make me wonder a bit???? I have allot of the same symptoms and I have had allot of abnormal test and allot of different Doctors have mentioned MS over allot of years!
Over the years I have gotten worse, I now walk with a cane, bent over, if I ever got pulled over driving and was asked to walk a straight line with one foot in front of the other,.....well.......I can not do it! nor can do the finger to nose thing!, I can't do either of them! I will go to jail for sure! ( but not realy funny! ) It kind of scares me because I am not that old, I will be 58 in June, (I know my beard makes me look older,) but I have seen the changes in me and it scares me! and I really worry, I worry that since I have changed this much, in the last 10 or so years,........what I will be like in the future??? I don't know!!! As of now no one has ever connected the dots and have came up with a firm diagnoses! They do know I have degenerative Disc disease and arthritis, and Chronic Pain, and a couple of Doctors also say I also have Fibromyalgia, and a couple of other things! But no firm answers for this other stuff! One of my past PCP's said quite a while ago, "what difference does it make? Most neuro degenerative diseases are not curable anyway!" Well maybe he is right! But I would still like to know!
I'm Retired USAF, went back to school and became an RN, and now am on ful disalbility!
Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!)
Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV
Post Edited (White Beard) : 4/6/2009 8:06:52 PM (GMT-6)