We have a little in common; I'm only 21 & I've had CP since I was just under 19. It's only been since November, though, that I have been on opioids. Frankly they did (and still do) terrify me, so I put it off as long as I could possibly tolerate while I tried literally every other possible alternative. I was really stubborn & would refuse every time my doctor suggested putting me on pain medication. I was a real mess from the pain (to say the least) when I started opioid therapy. Oxycontin was the first that I started with. It only lasted 8 hrs for me as well (from what I hear that is quite common), and after a month or so, my doc did increase me to 3X/day. Unfortunately I was not able to get to a therapeutic level of oxycontin before all the side effects caught up with me (apparently this can happen with the longer acting medications). It was a disaster. It made me so sick that I couldn't take anything for several days & then started going through withdrawls. My doc then switched me to regular oxycodone, which was a pain, because I had to take it every 3 hrs! Long story short, the oxycodone didn't help me either, and we switched to dilaudid, which I've now been on since February. Unfortunately, my biochemistry just seems to be incredibly resistant to pain medication. I've only ever gotten minimal relief, if any. I'm still quite a mess, sitting here in constantly in severe pain, not a normal college student to any degree. It is so draining, both emotionally & physically.
I'm currently tapering down off of the dilaudid to re-evaluate things. Just last week I asked my doc about
the possibility of switching to another med which would be more helpful. He said that if it were anyone else, he'd say another med would be helpful, but with me... We are now looking into alternative pain management strategies -- for those people like me who don't respond to normal treatments. The stuff we are looking into scares me, but I suppose it scares me even more to think of what will happen to me if I continue to live in such severe pain with little hope of relief. Who said just because you are young doesn't mean you have problems (although I've been through my fair share of doc's, and I'm sure you probably have too, who don't believe you because of your age. they need to live in our shoes for a day. then they'd understand)? Oh, I don't think I mentioned, but my pain is from a severe, traumatic eye injury. I still don't have a diagnosis, but we are continuing to find out more and more, we just don't know what any of it means, or how to treat it, because my condition(s) is very rare and characteristically unresponsive to treatment. I suppose I'm a case for the medical journals. Once my docs finally decide what to call this thing.
Oh, and welcome to the forum. As you've probably already begun to notice, we are a very supportive bunch! This forum has actually helped me more than anything else. It's really a godsend for me, and others as well. Good luck with the doctor's appointment tomorrow.
Post Edited (skeye) : 4/13/2009 7:47:05 PM (GMT-6)