Posted 4/25/2009 10:34 AM (GMT -6)
I have been on a new Medication called Low Dose Naltrexone. From prior posts you all know I have a triple fusion in the neck, low back disc bulges and severe nerve damage of both legs as an added complication Lymphedema left leg! I have been dealing with Severe pain, headaches, spasm, burning and numbness since May of 2000.
I have been on many medications over the years, in addition to Homeopathics. I had a severe reaction to Lyrica last year, because of that I can no longer take any formulation for Nerve pain. I do acupuncture, massage, cold laser treatments, magnets etc. I was evaluated for the Spinal Cord Stimulator but not a candidate! Basically, any time I am told of a new treatment, I try it (as long as the possible side effects are minimal) for fear if I don't, it may have been the one thing that could have changed the pain level.
I worked for an M.D. who is also a Homeopath, I go for injections from him called Neural therapy which is like Trigger point injections but done with Procaine, B12 and Traumeel (a Homeopathic anti inflammatory,pain/nerve treatment) therefore, allowing me to get them as often as needed vs. Cortisone! These have helped with spasm, headaches and numbness but I have to get them every 2 weeks!
Last month I went to see him and he told me about a medication Low Dose Naltrexone (LDN) which is high dose 50 mg. is used to treat drug addiction and alcoholism. Studies have been done at a Low Dose 3.0 mg dosage to treat Crohn's and Fibromyalgia both of these conditions respond very well and very quickly. He said they are also using it for Chronic Pain, it is compounded by a Pharmacy in NY and the only side effect may be nausea or fatigue. I delayed taking it for 2 weeks after I rec'd the medicine because I was scared, I decided to call the Pharmacist and she said to start off by taking Benadryl with it to prevent the nausea/vomiting. Finally, I started it on 3/28, it is a 1 pill at bedtime dosage, you continue to take your PM as prescribed. Normally, when I get up in the morning I take a pain pill and then have a 2 hour ritual of heat/ice/rocking motion, anything I can do to get moving. I normally go to bed at 10pm toss and turn all night and finally give up and get up at 4-4:30 EVERYDAY and feel like CRAP.
After 3 days on LDN, I was able to get up and move after only 30 minutes of my routine, I slept 2 solid hours before waking every hour like usual. Day 5 I was able to function on 3 pain pills vs. 4.
I have now been on LDN for 30 days, I am sleeping a little more comfortably, I wake up and am able to move around in 15 minutes, overall I don't feel as achy, I can't say the neck pain is better, but I have less spasm and the nerve pain is down 50%. The swelling in the left leg is 75% better. This is a MIRACLE in my world. I find myself wanting to actually do things...I have been a hermit for the last 5 yrs. Most days 3 pain pills keep me going others its 4. According to this Dr. and the Pharmacist I am doing well and responding. Even if this is the most relief I get it is well worth the $35 a month cost.
Also, I went to my PM Dr. for approval before sending for the medication, he was able to find the study info easily and was 100% on board and very hopeful by what he saw.
Its not a guarentee for everyone but the Pharmacist did tell me that you will know within 2-3 weeks if LDN will work for you.
People with Crohn's and Fibromyalgia have reported 100% relief in some cases!
Knowing that we all suffer pain from different causes and how debilitating this is to our lives I wanted to share this and I pray that you will look into this. What if this gave you a small dose of relief, wouldn't that be wonderful?
I am hopeful for more improvement and as I've said if I hold where I am today, it is worth it.