I just got back from spending the entire day at a dog show! It was a lot of fun, despite my eye misbehaving. This was my first show, I handled my 6 mo golden in the ring. He was so good - got 2 second's! It was a lot of fun, even if I didn't quite know what I was doing (I took a 20 minute handling class prior to the show & then had his breeder teach me how to stack him, but that was it). It is much harder to handle a dog in the show ring than it looks! I am pretty exhausted. Hours and hours in 90 + degree heat and sun will do anyone in! Between the heat, the poor vision, and the pain, I slept for 3 hr when I got home (that is as much, if not more than I usually sleep in one night)! My pup is wiped too!
I do want to thank you all so much for your comfort and support!! It means so much to me! Thank you all for having faith in me & encouraging me to stay positive! You guys really help me to keep going! I don't know what I would do without you all!
I am very fortunate for my pcp. I've only been with him for several years, and I had only seen him once before this injury - so he kind of got thrown on the band wagon, but ever since the beginning he has been so encouraging and determined. I did see a PM for a while, but ultimately decided to switch my pain management to my pcp, since he was more than willing to take over. I am so glad that I did. I think I'd probably be in even worse shape, in terms of the frustration, etc, if I had stayed with the PM. He was wonderful until he ran out of procedures to do on me. Then he really didn't give me the time of day (it was like he went from caring, to uncaring overnight). My father has also been a godsend. I don't talk to him very often, but other than the people here, he is the only one that I can talk to. He doesn't understand everything that I am going through, he can't, but he at least understands how the pain affects me on so many levels & how frustrated this whole diagnosis process is. I am sure it's probably because he is a doctor (who has a lot of experience treating CPers) that he understands so well, but no matter, it is nice to feel that someone understands & is on my side!
Pete & PA - I hope you two are right that they are going to find something & get me some answers (including a treatment). I sure hope it is soon!
Char - the heat is thing that scares me the most with the fentanyl patches. I have had one on since Friday night (haven't noticed anything, but then again we started on the smallest possible does, which is no where near the equivalent amount of medication that I had been taking). Of course of all times, we are in the midst of a heat wave! It was in the 90's today and yesterday, and is supposed to be in the 90's through Tuesday! I spent almost all of yesterday & today outside and was sweating like a pig! My poor body is in shock! It went from being about 40-50 degrees during the day, to 95 in all of two days! What happened to spring? We just skipped over it and went right into summer! But of course, it is supposed to be back in the 50's towards the end of the week. What can I say, I live in New England... I will look into a pain psychologist. I have seen one in the past, but it was just to learn biofeedback, and he was far far away from where I live. At least my regular psychologist understands some about CP/chronic medical conditions, because he has his own fair share of health problems.
Dagger - Thanks for that stat. That is very interesting. I'm relatively sure that I am one of those 8%. For whatever reason, I always seem to fall into that small minority of people who are not helped by such & such treatment.
Fatherjohn, Whitebeard, Kara, edt, & undone - thanks so much for the hugs and raising my spirits!