Hi I am newish ....well to this board anyway.

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Forum Moderator

Date Joined Jan 2007
Total Posts : 3570
   Posted 4/28/2009 9:04 PM (GMT -6)   
Hey Everyone,
I have been lurking a bit here.  I hope you don't mind me posting here some.  I can definitely relate.  I have nerve pain in my lower legs and some spasticity in my upper back and neck as well as my left leg.  I wake up feeling pretty good but at the end of the day I am always hurting.  Sometimes it is bad.....other days I bear up pretty well. 
I am looking forward to getting to know you all.
Gretchen       co-moderator MS board       diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

Veteran Member

Date Joined Aug 2006
Total Posts : 9664
   Posted 4/28/2009 9:35 PM (GMT -6)   
I wanted to says "Howdy" and sure wish we'd all meet in a better way than Chronic pain, sure hope you get a low pain
day soon..any kind of back pain is usually the pits but there are a lot of us here with it, sometimes bearing up is all we can do.
my hot packs and tens unit are miracle workers sometimes...
lots of soft hugz for now and welcome the people here are so very nice...
* Asthma, Allergies, Osteoarthritis, Spinal Stenosis, Degenative Disc, Fibromyalgia, Gerd,
Enlarged Pituitary Gland, Sjogren's and Ocular Migraines


White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3699
   Posted 4/28/2009 9:48 PM (GMT -6)   

Hi Gretchen

You are always Welcome here! I am sorry that your having pain, but if you have been "lurking" here a bit you know that you are in good company and that this forum has the GREATEST  bunch of caring and compassionate folks  anywhere! And if your having pain then your are part of our family! 

 As a side note: You are proof that one of my Doctors that I had was completely wrong because he said that pain was not a symptom or even a part of MS, and MS patient usually never had a problem with pain!(he was the same neurologist that said those spots on my MRI of my brain were nothing to worry about! but he didn't know what they were either!.)

Although I hate to see you having pain I really am glad you are with us!

I wish you well and Good Luck to You!

White Beard

  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Veteran Member

Date Joined Mar 2008
Total Posts : 3089
   Posted 4/28/2009 10:20 PM (GMT -6)   
Hi Gretchen,

Welcome to the CP board! I posted once before on the MS board, and you were very helpful to me, I hope that we can be the same to you. As Whitebeard said, we have a fabulous group of people here. It is so wonderful to be able to come here where everyone understands what you are going through. Regardless of the type, we are all united by pain, and so we can all sympathize and relate. Keep posting with us & you'll no doubt realize this for yourself!

And Whitebeard, you are not the only one. I was also told by both my neurologist & another doc that pain is not a symptom of MS.


Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 4/28/2009 10:38 PM (GMT -6)   
Hi, Gretchen,
I want to add my welcome to everyone else's. We definitely don't mind you joining us - just sad you're having pain. I don't know a lot about MS, but read Richard Cohen's book, Blindsided, and found it very insightful for anyone dealing with chronic illness.

BTW, I love the quote in your signature. Maybe it applies to us all. No lesions on our soul.

Welcome hugs to you,


Veteran Member

Date Joined Dec 2007
Total Posts : 1235
   Posted 4/29/2009 12:08 AM (GMT -6)   
Hi Gretchen and welcome to this family of ours. We hope that we can help offer some support and comfort on those days when things are not going too well pain wise and on those days when they are.....
We're glad you decided to join us....
PLIF/TLIF Fusion w/Instrumentation L4-5 Spondololysthesis L4-5.Laminectomies L4-5, foraminal stenosis L3-4, L4-5, L5-S1, herniations L3-4, L4-5, L5-S1, central canal stenosis L3-4, L4-5 and L5-S1
POST OP CES 3/30-06
Neurogenic Bladder and Bowel, bilateral numbness legs and feet
Revision for failed Back surgery, pseudoarthrosis L4-5, hemilaminectomies L3-4, L4-5, L5-S1, bmp added to revision fusion, replaced two bent screws that were reversing out of vertebrae - August 2, 2007
On going back pain and neuropathic pain, failed back surgery, consult for scs, decided not to do that at this point.
Adhesive Arachnoiditis also......just what I didn't need..9/08- adding bilateral ulnar neuropathy with severe compression to the mix. They want me to see a surgeon for ulnar nerve surgery, but I'm not biting.
I've seen enough surgeons over the last few years.

Regular Member

Date Joined Apr 2009
Total Posts : 109
   Posted 4/29/2009 5:06 AM (GMT -6)   

Hi Gretchen and welcome to the board. I lurked as well for a time before posting and by the time I did I felt I knew each of those here a little better but they still never cease to amaze me in their strength and compassion for others.


Veteran Member

Date Joined Apr 2004
Total Posts : 1203
   Posted 4/29/2009 5:19 AM (GMT -6)   
Hi Gretchen,
Nice to see you again but sorry it's due to pain. This is another wonderful group of people here and have been very helpful to me anytime i've asked for advise on an issue.I hope you feel as welcome here as i have and hope you have a lpd=(low pain day). Take care, Kay

Veteran Member

Date Joined Dec 2008
Total Posts : 773
   Posted 4/29/2009 7:48 AM (GMT -6)   

Hi Gretchen and welcome to our FAMILY!  Its always sad to see someone new!  As you know from lurking (we all do or have done it) everyone here UNDERSTANDS and will offer great advice.  The sharing and caring will make life a little easier.  I come on a few times a day, there is always a post that hits home for me!  I still lurk eyes

Have a low pain day!


Regular Member

Date Joined Jan 2009
Total Posts : 498
   Posted 4/29/2009 7:57 AM (GMT -6)   
Hi Gretchen

For a moment I was a bit surprised to see a thread by you. Well I am sorry to hear that you are in pain. I am sure you would find all the support from people out here. Take Care. I have always cherished your postings on MS forum.
45 years Male Attorney
Diagnosed UC October 1989
Had two stage J Pouch Surgery Nov 2005; Take Down March 2006
Complications after surgery - Incisional Hernia and Ano Fistulas
"There are only two ways to live your life. One is as though nothing is a miracle. The other is as though everything is a miracle: Albert Einstein
"What you are aware of you are in control of; what you are not aware of is in control of you."

Forum Moderator

Date Joined Jan 2007
Total Posts : 3570
   Posted 4/29/2009 8:13 AM (GMT -6)   


I am surprised by so many quick responses!  I guess I am not looking at response times while I lurk!  Our MS forum is very quiet and slow moving.  My head literally snapped back when I say so many responses.....(great there goes the neck for the day...lol).  It is really nice to see how many of you I have already met or know.  White beard I remember your post well.  Skeye I know you just recently posted.  Kay.......what can I say.....I have enjoyed our chats many times.  Chartreux I know I have chatted with you as well.  PSA.Delhi I am truly flattered and humbled by your post.  PAlady, thank you for the compliment on my quote......it is my own.  It truly keeps me going to remember it.  Patti, Angel and mrsm thank you for your kind posts and welcomes.

Thank you all for such a sweet response.  I feel very welcome.

Gretchen       co-moderator MS board       diagnosed with MS July 2006
I have no lesions on my soul and so I will live with no limits.

Becoming undone
Veteran Member

Date Joined Jul 2007
Total Posts : 927
   Posted 4/29/2009 12:12 PM (GMT -6)   
Hello...these are some of the best people on this site. It is so sad to see so many in pain...I want the magic wand and would take it all away...
again, welcome...
"The earth laughs in flowers"

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