It means so much to me to be able to share this with all of you, you truly are the only ones that understand what this progress means!! My husband, kids and best friend are more than excited. Most of my other family and friends say thats so nice to hear, they don't really understand what WE live everyday.
PALady, yes I have severe nerve damage in both legs and feet with Lympaedema in the left leg....it has helped the tingling, last year I had a severe reaction to Lyrica so I have had quite the time since then, the one thing that has helped take the edge off is a Homeopathic ointment and Chewable tablet called Traumeel or Traumed (same thing) this is available in Healthfood stores! Since starting the Naltrexone the tingling is better, still there but different...I am more aware of the numbness....I don't know if this happens to you but I fall for no apparent reason, we joke that I am a professional faller, but seriously its very scary when this happens! I'm told its due to the nerve damage! Also, the LymphE is about 75% better, this alone is amazing...I may be able to wear shorts in public this year, if anyone has this the affected limb can get very big and lumpy with fluid and redness (DISGUSTING).
Kitty, when I approached my PM Dr. about LDN, he did not know about it, he went to his computer right away, came back and said DO IT!!!! It is a compounded formulation 3.0 mg. there are 2 pharmacies that make it....I was told the NY Pharmacy was better because they are involved in documenting the research, so I chose to use them, Park-Irmat Drug Corp. 212-685-0500. I spoke to Marcy (Pharmacist) she was able to answer ALL my questions, she also gave me her email address. Its costs $35 for 30 pills the dosage is 1 at Bedtime. Compared to what I spend every month for all other treatments this is a bargain. She told me you usually know within 2-3 weeks if it is going to work for you. She was right I did notice changes within the 1st week, took 45 min. vs. 2 hours to be able to move! I bet your Dr. knows about Naltrexone for sure!
Sandi, Skeye, WhiteBeard thank you always for your support....Sandi let me know what you need from the grocery store I'll be happy to get it lol. Skeye, I am being very careful not to over do!!
Will keep giving updates every few weeks...I think its worth the try and the fact that you know quickly if its for you makes the investment worthwhile!!
Hope we all have a Low Pain Day!