I am sending you soft big giant HUGS!! PALady is right, I know when I was being evaluated, I was told not to expect a MIRACLE, having success with the SCS may mean cutting the PM dose! The Dr.s nor the SCS rep ever said it would be a 100% fix. I also spoke with several patients that had been wearing the SCS for over a year, they themselves advised me to be realistic in what could happen with the SCS. I was also told the trial may work and then when the permanent unit is put in it may not.
I don't want to burst your hope bubble, just wanted you to know!
It turned out, I wasn't a candidate....I did things differently, I went to the Neurosurgeon after this was recommended to me because in the end he would be the one doing the final implant. I didn't want to go through the process and trial only to be disappointed. I'm glad I did because he told me alot of things my PM Dr. didn't. I was in the 50-50 category, 50% chance it may work or 50% chance it might not....I decided it wasn't worth the $$$ and risk.
Hang in there Scarred, it will work out for the best whatever the decision is! Until then we are here for you always!!
I have had my SCS for a little over 3 years. Since implantation, I have NOT reduced any of my pain medications. I hope your expectations are not too high. The implant provides a tingling sensation that serves as a diversion to pain sensations. It does not eliminate pain signals. What you end up with is the same amount of pain and an overlay of a secondary sensation that blurs pain. There are times I find it very annoying - too many different sensations. I would gather more information about the SCS - you expectations of being medication free may be unrealistic. Implanted intrathecal pumps on the other hand offer a different medication delivery system, so most people have a dramatic reduction in their pain meds - needing only oral break through medications.
SCS can help, but patients rarely end up drug free. It is another tool - a very very $$$$ one that many doctors push. Leads often float causing erratic sensations. Many times I have to sit still when I use mine, movement can cause the leads to shift and the change in the magnitude of the sensation can drive you nuts.
Just my opinion. I don't want you to expect too much. Talk to as many people as you can that have them. Do not depend only on your doctor or the sales rep. Good luck.
Rare neurodegenerative disease called “Multiple System Atrophy”. Wheelchair, O2, & Bipap, intrathecal pump, neurostimulator, dystonia, neuropathic pain, spasticity...etc..etc.
Scarred, I asked my PMS about the psy eval and why it is needed. He stated that it is a tool that is used by ins. companies as well as medical professionals to help identify people who will benefit from the implant and identify those who have unreal expectations. He stated that the implants at best reduce the meds and pain 50%. The Boston Scientific rep told us the story of a client that was spending $12,000 per month on pain meds. The unit worked wonderful for him and the unit was paid for by the saving in pain meds in a short time. The units cost about $30,000 each and as you can imagine, ins. companies do not want to pay for anything they don't have to. Keep fighting and you well know that one persons experience is not a guarantee that yours will be the same.