I had my surgery on March 6th. I had the paddle form of the Medtronics Neurostim and was really really happy with the results. I had struggled with severe pelvic pain from endometriosis and heavy abdominal adhesions/scarring for the last 9 years, and found that the stimulator really helped me a ton.
I was cruising along in my recovery ---- trying hard not to move too much in orderto prevent pulling anything out. The dr had given me permission to have relations with my hubby when he returned from deployment.( on r and r from iraq ) but only after i hit the two week mark.
That is the only thing i can think of that maybe could have caused a problem, but we were very careful no crazy twisting or turning or lifting....
The only odd thing i didn't mean to do was when i accidently knocked over my bedside table and instincually turned to grab it from falling down. It was just before the 2 week mark. I remember It scared me becuase it hurt the incision area, and that area had been feeling pretty solid, but the pain lasted a second only----and i felt absolutley normal the next mornign.
When i hit the 3 week mark after surgery I had been off the meds for pain for about a week. it was then that i noticed that when i lifted my arms to pull a shirt on----- my left side hurt, where my kidney and back and flank were.
Odd, it felt as though i'd been doing exersizes or something---obviously i hadn't. I had noticed that in the previous week when i used the machine it would cause my left side to cramp tight instead of feel like bubbling or vibrating.
I turned the machine off, and called medtronics. They said that I was probalby having a reaction as my body reduced swelling and it was just a matter of reprogramming. I left it turned off, and made an appt to reprogram for 3 days later.
Meantime, as i had had kidney infections in the past, even oneswith no uti symptoms at first, i felt it prudent to be sure the stiffness in my side and back wernt' the beginings of an infection.
The quick test came back negative. Medtronics reprogrammed my machine and I went on my merry way, no longer cramping up when i'd turn it on. But still tender on my left side I was given valium to use as a muscle relaxant over the next few days to calm the area, and i left town for the weekend.
That was on wed. By Sunday the pain was so intense and severe that i could hardly stand it. My side felt sore and stiff--- a solid strong burning sharp area, and if i lifted my arm a bit, or bowed my head it felt like my side was tearing open.
I got a call saying that the lab had grown outmy urine culture and that it HAD shown a slow growing infection---they said probably cross contamination by me on accident, but put me on macribid anyhow. Monday i returned home and when i bent my head to climb in the passenger side of the car i screamed at the senstation of burning and tearing.
I went to the er, and they checked my urine and found a full blown infection, and when the dr hit my back near the left kidney It made me scream. (i'm not normally such a wuss)
He was sure it was a kidney stone. He had a crying mess of a woman, who couldnt' find a comfortable position, a positive uit test, and a strong reaction to his pounding on me.
He sent me to the ct scan---no stone.
He felt maybe it was asmall one that would pass on it's own. He said that while a ct scan shows most stones it might miss something small enough to fall between the layers the scan cut it's pictures in and then overlapped with.
(later i've gotten vastly differnt oppionions on how ct scans will show all stones, and how they overlap so well that they can't miss a stone large enough to cause pain.)
that was 5 weeks ago.
no stone passed, but i've had little flecks of stuff, when i sent them in to be tested they came back as not normal compistion materials of kidney stones.
I have had 3 more reacurring infections though.
I FINALLY saw a urologist today----he said if there is no image of a stone on a ct scan, there IS no stone. He said that the little flecks i've passed are just debris, and that it must be something else causing all this pain...
So, one other thing i can think of is that My lead may have slipped and is pinching a nerve?
Ironic, i called and postponed my 6 week follow-up becuase i was in too much pain to drive the hour and a half to the neurosurgion's office, or even to get the x-ray on film. At the time i thought i was just putting it off till i passed the stone. I thought no way was anything wrong, I'd pass the stinkin stone, and then go through the motions of double checking all the follow up fromthe neuro-stim.
Today i called backUp to the neurosurgion's office and explained that the stone was likely a missed diagnises---and asked when they could get me in to verifiy i hand't had the lead slip--- therby causing my pain. They can get me in in two weeks. Unfortuanatly no sooner because my dr is on vacation out of the country.
So, how likely is it that my pain in the side matches the sensation caused by a slipped lead landing and pressing on a nerve?
The issue of the reacurrant UTI's is still at play--but i've had uti's in the past that never really died out and just kept coming back after each antibiotic is over
(As I got each infection, my normal provider thought that the STONE was causing the infections and shedding bacteria as it came down.)
Now I dont' know what to think---
I am in too much pain to think----
The pain is solid, strong and sharp----doens't let up for a single second, although it gets worse sometimes. The first three weeks it hurt to lay on the left side, as though I was bruised inside, about 10 days ago i could sleep on my side again.
the pain seems worse with each infection---then gets back to a little less overwhelming as the infection gets under control.
It seems less horriblewhen i first wake up now
(although in the beginning nights were horrid with no sleep---it felt like laying down was breaking me in half)
The lower level of pain in the morning quickly builds up as the day bears on.
The worst things to do are bending over, lifting my left arm, bending my head down toward my chest, or putting pressure (like a padded chair) where it presses into my back where my kidney is, or laying back flat or reclining.
The best things for it are, heat or ice, standing up or sitting straight up, laying on the right side, and lots of percacet and ibuprofen!
ok, i think that is all---i'm sorry this is so long, but i'm at the end of my rope.
for 5 weeks everybody has said to see the urologist, by the time i get in there to see him---he says---no dice.
Hoping somebody here has had this experience or something simular to say yes---this is what a pinched nerve can feel like!!!
Post Edited (emily837) : 5/14/2009 8:44:54 PM (GMT-6)