Thanks for responding so quickly. This site is filled with so many knowledgeable people, don't know where i'd be in my treatments without you guys.
I have a journal of all my symptoms already(learned this from my colitis/prednisone episodes in years past). With chronic illness i know changes are measured in weeks/months, not days. And when you are sick and loaded up on up to 12 medications, 25 pills at a time your mind may not be functioning normally.
As far as Monday, I have spoken with this doctor already on the phone and told him what my issues were and what is causing it. I had called 2 interventional doctors before that and they said they don't treat disease, only spinal issues or nerve issues. This particular doctor said he would see me and at least consult with me so I appreciate it.
For narcotics, I meant that when I told my doctors what they had given me for pain wasn't preventing it from majorly inhibiting my life, they said 'the only other thing is narcotics and we don't do that here' or 'i don't want you to get addicted because narcotics is the only other thing i can give you', I just couldn't believe it. First, I can't believe that narcotics are all I have left here. There is NOTHING else besides ULTRAM and NSAIDS and narcotics???? Secondly, I asked what am i supposed to do then and they said 'DEAL WITH IT'. BOTH of them! That is appalling and infuriated me. I swear, I wish there was something that I could transfer my daily pain to them and maybe they would understand that its pretty impossible to function like this. Pain isn't even all, I have to deal with mental disturbances, brain fog, fevers, extreme fatigue,ringing ears, antibiotics side effects, tingling in my face, fingers, and feet, etc. So that is why I felt I needed to consult with a pain specialist, I have to find a way to be able to live like this and still be productive(I have a senior software developer/system analyst). I have shown some improvement with lyme treatment, but not enough where each day still isnt a struggle. I'm pretty lucky I have a great employer and they allow me to work from home sometimes(I take my laptop into the BATHTUB!!). But my work has suffered, and I hate not being as productive.
Anyway, I usually do not suggest anything to doctors unless I know them and we have already tried many things their way. My objective in going to see this doctor is just getting help. And I hope I can add him to my team of doctors who I've been able to find to help.
Again thanks for the responses everyone!
Hope you are all having good days.
UC/Chrons - Feb 2004
Panic Disorder/depression - June 08
Lyme Disease - June 08
Dysplastic Nevus Syndome - birth
Currently: Treating Lyme Disease
Drugs: 6mp 75 mg|lialda 2.4 mg|Paxil 50 mg|Klonopin .25 mg|Trazodone 50 mg|WellButrin|Bactrim|PRN Perc/Tramadol