Wow! Sounds like you've got some nasty stuff going on too. I knew about some of it, but I didn't realize that it had turned into a systemic infection! That's got to be really tough to have all these problems caused from just one little thing initially. I have no idea if eye infections can cause sepsis, but I suppose it's now systemic & isn't controlled, that it could. But I'm just basing that off of a random guess, but I'm sure your doc could tell you. I hope they find something that helps soon! I know how frustrating it can be to be "out of options."
My eye problems are a combination of genetics & a traumatic injury. I inherited a bunch of eye problems from my parents (lucky me, especially since mine are the worst in the family) & so I practically lived at my ophthalmologist's office before the injury, as my eyes would change, some times as often as every week! I'd had surgery before, which helped, but had begun to stop working about a year/year & a half before I injured myself. At that point we were trying to hold out until I was 21 & had stopped growing (apparently that is when your eyes stop growing/changing, even though your body really stops earlier) & we could operate again. Then I ended up accidentally poking myself in the eye with my finger (I know, it sounds silly). I was trying to push my hair out of my face so that I could see to get my shoes on & I didn't have my glasses on at the time (since I had just gotten out of the pool) & I ended up with my pinkie half way-plus into my eye socket. I actually did quite a lot of damage (although I was stupid & didn't see a doctor until 12 wks later when I started having problems opening my eye lids, on top of all the pain & double, and sometimes triple vision). I had just started the semester & I thought it would get better on it's own & I didn't want to be a pain because I had just seen my eye doc not a week earlier. LONG story short, I came about a millimeter away from losing my eye, tore a bunch of muscles, dented my eye ball, greatly exacerbated my existing problems, caused new visual problems, had to have surgery, dealt with recurring infections for 6+ mo after the injury, had neurologic problems in my eye lid & some neurologic problems of my eye muscles, swelling, intermittent yet predictable redness (hard to explain "briefly") and of course severe pain behind my eye that never went away. The main things I'm dealing with now are the pain, major neurologic problems with my eye muscles (which is supposedly related to my brain stem), visual deficits, swelling, the same intermittent redness, and all of the problems that I have had since birth. I think that's it. It's pretty hard to summarize everything, as I've had a lot of things go wrong with that eye! Oh, optic nerve inflamation. I forgot about that one. Now I just need someone to put everything together & figure this out!
It's a little too soon to tell, as far as the Chinese medicine is concerned. I just started taking the herbs yesterday (boy are they bitter, plus I have a very strong gag reflex! But I should have known, because I've been working with herbs on & off for a year, just not this form - I usually use powdered herbs, rather than a decoction of dried herbs, but let me just say that the decoction is much easier to take! I have an even stronger gag reflex with the powder. Ick!). We tried the new acupuncture plan tonight & it was amazing. My pain is still the same (I expect that it will take time), but I had a remarkably strong physical reaction to the needling. I've never experienced anything like this before & I've seen some crazy things happen when I did acupuncture on my shoulders several years ago. Supposedly this is a good thing! We'll see with time!