Introduction

Hi !

Okay, have typed out intorduction sentence 4 times and erased it all 4 times...

try again..

HI! Im dani :O)

I am 28yrs. I am married and have 2 beautiful lil girls.

I have been told I am a "Chronic Pain Patient". I have often told those around me that I wish they wouldnt use that term it sounds awfull. Unfortunatly my pain psychologist (as always) had a zinger for a reply one day. She said, "Well of course it sounds awfull... it is.". Then she rushed in to the lesson for that day... as always with about a zillion lessons to fit  into a tiny time slot. *sigh*

I guess I could start out by saying I "suffer" from chronic pain due to.. what? Spinal deformity? Scoliosis? Degenerated Facets? those docs.. all those years of training and all I get out of them are the same 2 sentences I wish I never had to hear ever again...

"We don't know."

"Your so young."

My husband told me other day.. he said, "You look tired."

To which I replied,"Well, insomnia does that ya know..."

I have been in "Chronic pain" for a lil over 4yrs now. What started out as a lil circle of stinging and burning at the base of my spine... has spread through half my back. My hips ache with a relentless persistance. My shoulders and upper back require alot of exercises to keep functioning.

And function I must do.

I find it odd when folks ask "Can you work?"

Of course, it is either I go through a day and have to eat x5 , maybe vomit a few times, drink a whole lot of water and change clothes frequently (i really hate the perfuse sweating) or my children go without? Not an option! So i tuffin up and hope and pray im not damaging things too much. True, there are times I wish I had someone to help, someone to "call in sick" to. Sometimes just someone to talk to. Maybe that why I found this forum. Who knows? I am VERY suprised to see so many chronic pain patients. I am .. well intrested, to read about the obsticles others have faced...

(Oh and I have horrible spelling, grammar, and ramble on and on can you tell?) On that note.. I just wanted to introduce myself and say "hi".

greatful and relieved to find this forum.

*huggs*

dani

 

Hi Dani and welcome to the family!! I am very glad you found us and decided to join in. This is a wonderful bunch to hang out with and you will find that the folks here really do care and understand what you are going through.

We don't mind babbling on or anyone's grammar or spelling. As long as the idea comes across that's fine by us. Pain does awful things to the mind as well as the body. It takes wonderful people and pushed them to the edge but...ya know, with the good folks here we can all learn to have a great life!

Hugs,
Chutzie

Welcome Dani;

                      I'm glad that you have found us here at Healing Well, I think that you will find this forum very helpful with everyday problems that all of us who suffer from chronic pain experience, The best part about this "family" is that we give you the advise from experience because we all suffer from cp, sometimes you won't like the advise and sometimes you will, that is what Set's this forum apart from all of the others, the honesty nothing is candy coated here and everyone truly tries to help you with any and all questions or problems you mite have. I have received nothing but great advise from everyone here,

                     Sam 

Hi, Dani,
I also wanted to welcome you to the forum. It's late and my eyes are kind of crossing, but I see you're online, too! I hope you're not one of us who has trouble sleeping, but you won't be alone if you are!

Next time I hope to be able to respond more specifically, but I did want to add my welcome.

PaLady

Hi Dani, welcome!!!!

I am not a young mom (36), but i do have two young children (5 and 2). I am a stay at home mom and suffer from chronic pain. Like u, i CAN:T call in sick for work. Thankfully my mom has really stepped up to help out after two surgeries in 16wks has really taken it's toll on me.

Everyone here is wonderful! I hope u will find the support you need! Nice to meet you!

Thank you all for such a warm welcome :O)

Fatherjohn,
My busy little bumblebees are 5yrs and 8yrs (and Geminis to boot!)
My husband now, is very supportive. Unfortunatly, I lost nearly all contact with my "friends" while struggling with re-learning to live my life (no easy feat, i assure you). It took all that I was as a person to be strong enough to forgive my husband... I was told things , unfortunatly and treated badly for quite some time by all those around me. Out of all I was told.. my favorite..?

"I'm sorry, so sorry Dad (hubbys father), I DO want so much to do all this for him still, but i cannot make my body GO! I dont know why, im sorry I just cant make my darn body go."

"If you could just do whatever it is you need him (hubby) to do and be indifferant about it that would be great."
Was told to me in refrence to my yelling at hubby for not helping me with yard work (just burning the weeds, i wasnt shooting for an oscar his first time out)....

By the time he realized the doctors couldnt "just fix" something they called levoscoliosis.. ( a "structural" problem they said) I had already been recieving treatment for a year. There he was crying to my spine specialist. There I was wondering where the heck hes been.. wadda re ya NEW?

In any case, I was very plain. I told him that I was sorry I couldnt be the person that he needed, if he wanted out of the marriage I completly understood. I would miss him very much. But that I really would be very happy to live in a lil apartment with too many cats. BLISS! I tell you.
In anycase since then hes been increadibly supportive and it seems, now, like weve.. I donno, Accomplished something, like there are no boundries no matter what. And here I go on rambling again.. Im so sorry I do that alot.
:O)

So to answer your question , yes, he is very supportive now. My lil girls arnt completly in the dark either.. but whats goin on with mommy is explained in terms they can understand. They know my doctor and like him very much. They know mommy has to visit the doctor and that he gives mommy special medacine so we can play and have fun. More recently, I have been letting them help in preperation of "mommy s medacine appointments" (spine injections). Im usually down and in bed for a day.. and I dont mean to put my poor hubby down, but oh my goodness how does one start THAT many fires in the kitchen?? Hes up to x3 now! safer for the whole neighborhood I prepare the meals ahead of time... besides the girls make a tedious chore much more fun :O)

*huggs*
dani

Shannon,

I loved the 2yrs stage for both girls, but my gosh they are so busy and curious at that age. I had increadibly hard time keeping up with lil rosie at 2 and i cannot imagine how you do it! I saw this sign on side of a van the other day , was funny it said "Rent a Husband!" "For all your plumbing, reapr, ladscaping.. etc" . What we NEED is a rent a mama. "for all your laundry, toilet training dish washing needs!"
*huggs*
dani

Dear Fatherjohn,

My injections... I know he uses combinations of things, i know that the injections arnt always int he same locations along the spine each time. When I get out I remember very little, I know that sometimes i remember crying and I think I hear people talking to me? In any case, when its over, then nurses fuss with me a bit and there are tender injection sites on both sides of my spine take up lil less than half of my back, basically all lower back area and couple below the base spine. Those injections makes the "stinging" go away. The stinging isERY intense and it can make everything swollen, tight, and make the muscles sticky, to where they stay hard. that is what injections are for. When I do have flare up during the shots, I feel something differant. It is a stiff ache of sorts with a lil odd feeling of pressure under the skin. Sometimes the sides get a lil sore.. like say.. if you had done yard work. Nothing major. The injections are one part of a .. kinda detailed pain management programm. The Injections lasts about 2 and half , sometimes three months. But, I wait as long as I possibly can. I donno, I still,LOL, LOL I guess just hope that maybe one day I wont have to go back. This last time, I was very tired and he kept trying to get me to schedual the appointment while he was there and not wait. It funny I remember telling him, "But I dont want to come back to see you." Then I went right to sleep. Bless his heart, couldnt have been stuck with a more unwilling patient if hed gone in search himself. He works so hard, I cant imagine what a day for him must be like. In any case, thats really all I know about the injections.

*huggs*
dani

Dear Fatherjohn,

The nurses.. boy those ladies are on the ball, I cant say enough good about em. Well, they fold these blankets up for under my stomach, use these lil round pillows for my feet, odd lil plastic feeling pillow for my head. You should see these ladies in action. I have met some folks, like you, and the injections dont work for them either. I met one really awesome nurse that had something that caused fractures in his spine, he said. That he wished they had worked better for him, his only took away 30% of pain. 8O(

*huggs*
dani