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Veteran Member

Date Joined Jul 2008
Total Posts : 1560
   Posted 6/7/2009 1:59 PM (GMT -6)   
Thought I would update you on what is going on with WC and the never ending line of hoops that I have been now stuck with (ugggg).  My doc has made an appointment for me with a Psychologist over in Wichita.  Another 1 1/2 drive which I will NOT get reimbursed for because WC is not paying for this one.....I AM!  Hubby's ins is paying part of it but still I will have to dish out a portion of the appt.
If I have to see this guy more then just the one time...I am looking at 50% of the fees which is going to put one heck of a dent in the extra funds that hubby makes.  Another Ugggg from me.  I sent off a email to my senetor to see what they can do for me...but I do not expect much since they are not allowed to see the conversation that the psychologist and I are about to have.
I am still not happy with the whole situation and have a feeling that WC will figure out a way to deny the SCS even after I go through this.  Depression is setting in once again.....oh goes on and I will once again get through this with my sanity intact LOL.
Hugss to all of you.
What doesn't kill us only makes us fight back harder! :P

Veteran Member

Date Joined Feb 2009
Total Posts : 999
   Posted 6/7/2009 2:21 PM (GMT -6)   
Scarred, On the one hand I am glad that at least you have a hoop to go through. The fact of the distance and the cost is another thing. I liked the ending statement in your post.
               "oh goes on and I will once again get through this with my sanity intact LOL."
This is the hard fact that we all have to accept at times. We don't like it. We did not invite it. When it came we did not welcome it. When it lingers on we do not cherish its presence. When we want to ignore it it has a way of reminding us. When we try to manage it it seems to gather more strength. Of course I am referring to this life with CP. We get upset when we try and control it and it seems to tame control of us and it creeps into every part of our life. You are strong and it shows. In the face of this ugly giant that you face every day even when it seems to win even through the doctors, insurance companies and state agencies. Lets gather togather to slay the giant. Don't give up the fight. You did not mention when you get to see this new hoop setter. Keep hanging in there.

Veteran Member

Date Joined Apr 2009
Total Posts : 536
   Posted 6/7/2009 2:34 PM (GMT -6)   
Scarred, It just doesn't seem right that something that should be a simple cut and dry approval. It should not have to involve all of this hoop jumping and 1 1/2 hr. drives to another appt. I don't understand any of this. If there are treatments and implants and such that will help with all of this agony, then why does everything have to be so long and drawn out to be approved or denied? It seems to be way overwhelming and exhausting. I am so sorry you are having to go through all of this. I know it is the way it is. And I shouldn't be voicing all of this.You know all of this yourself. You are dealing with this.I wish there was an easier way for you and all the others who are trying to get approved for a SCS. And the depression you are going through is absolutely understandable. But you have to believe in your cause. You deserve to get the SCS. Be strong. You have to hang in there. I know all of this is more than just "hard" on you. Please take care of yourself. We all care about you. Feel free to come here and vent as many times as you want to. There are plenty of available ears, shoulders to lean on,and caring hearts here.

Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 6/7/2009 4:27 PM (GMT -6)   
I always miss seeing posts from you but hate to see the "hoops" thing once again. Yet I'm not surprised, but am proud of you that you continue to stay in the game, so to speak. And it sounds like you're beginning to take charge of the game, and that's a good thing. Tell this psychologist how all these hoops are what's making you depressed and make sure THAT gets documented!

Maybe the SCS isn't the best thing for you. I don't know. But I know you'll find something better than what you've got now!



Pete trips again!
Veteran Member

Date Joined Nov 2006
Total Posts : 1899
   Posted 6/7/2009 9:11 PM (GMT -6)   
Hang in ther Scared, you are one strong Lady! Everyday being as selfish as I am, I wish I could be half as brave as you and a whole lot of others here in our forum. My pain & problems are nothing compred to what you and some of my other dear friends have to live through daily! I give all of you so much credit for the way you just keep on fighting the good fight! I'd have given up long ago had I been in your shoes!! I am truely humbled by people like you and Skeye and PA and Anice and FatherJohn and Whitebeard and so many others!!!! Just knowing people like you gives me the stength to hang in there and make the tough dicissions which normally would beat me down and leave my wimpering like a scared child. You inspire me!!!
Thank you for all you have done for me!
Your brother,
PS> Hang tough Girl, just like you did w/ your husband! You Can Do It!!!!
56 years old, Surgury, Radical Prostatectomy 8/20/03, PSA 6.6, Gleason 3 + 3 = 6, Adenocarcinoma extent (moderate) Stage & Margin:T2NOMX, No Metastases, Organ Confined, bone scan: Neg. 3 1/2 years of depression after surgery prior to Hypogonadizm DX, Testosterone Theropy> new 2/6/09> 400mg injections once a month. 56 and so glad to still be here to see my two sons grow up to be fine young men. They are both serving in the US Navy, Joseph is on the aircraft carrier USS John Stennis headed for Hawai and Pete Jr. is on The Asault Ship USS Bataan "The Jaws of the Fleet" on their way to the Middle East w/ 2,000 Marines aboard. I am one very proud (what they call me)> Big Pops! 

Veteran Member

Date Joined Mar 2008
Total Posts : 3089
   Posted 6/7/2009 9:39 PM (GMT -6)   
Hi Scarred,

I too have missed hearing from you regularly! I'm sorry (but unfortunately not surprised) that WC is still giving you such a tough time. It is absolutely ridiculous that you have to jump through all these hoops! I hope that this psychologist is understanding & easy for you to get along with. With any luck, his recommendation will be able to over throw that of the other psychologist! I admire the strength that you have to just keep going, even when your insurance is ready to give up, you keep fighting! You show them girl! WC picked the wrong person to mess with!! Keep us posted!

Many hugs,

Veteran Member

Date Joined Jul 2008
Total Posts : 2317
   Posted 6/8/2009 12:16 AM (GMT -6)   
Scarred, sweetie, hang in there.
I'm wondering why you say that your senator can't see the records from your new psych. Couldn't you grant him access to them? Of course, I would want to be absolutely positive that there wasn't anything in them that could be remotely construed as not being 100% in favor of you getting the SCS implant. Also, if you plan to do that, I would drop the complaints about how depressing the process to get approval is because you know they will just turn around & try to use that against you somehow. :(

I don't know whether or not you've finally got an attorney. My guess is you haven't since it sounds like you still haven't got a definite determination. Maybe it is time to push that issue. Perhaps that is something that your senator could help with -- setting a time line for a determination one way or the other. At least that would give you something to appeal.

I don't have WC, but when I lost my job & went on COBRA, my former employer stopped paying for my prescriptions. I was still making my monthly premium payments, but wasn't getting services. Then they stopped paying for my medical visits as well. They kept putting off making a determination or taking any action & it was driving me crazy. I finally sent them a letter stating that if I did not hear back from them by "X" date, then I would take that as a determination to deny benefits & would proceed with my state's appeal process. I'm not sure whether or not you might be able to do something similar with WC to try to force the decision, but I thought I would share with you what worked for me because I just feel so bad for you that you have to keep running in circles trying to even just get them to decide one way or another.

Like the others, I am amazed by your perseverance. Keep up the great work & hang tough.


White Beard
Forum Moderator

Date Joined Feb 2009
Total Posts : 3699
   Posted 6/8/2009 12:43 AM (GMT -6)   
Perseverance! You have got it, and that is what will get you through successfully! They sure don't make it easy for you do they?  Just one Hoop after another, just show them how tough you really are!  yeah
I do wish you Success!
Good Luck to You Scarred!
White Beard
  I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV

Veteran Member

Date Joined Jul 2008
Total Posts : 1560
   Posted 6/8/2009 9:57 PM (GMT -6)   
Sorry all....I am in such a horrible mood today. My back hurts so bad! I'm so sick of these hoops and rock walls in my way. Ohhh well I am so sick of worrying about this that its just no use.

Maybe you are right PA......maybe this just isn't meant to be. Maybe these are signs telling me that "you're doomed to stay on your meds so get over it." I just cannot do this anymore. I am so tired of fighting and I'm losing my last nerve. It's time maybe to let this SCS idea go and just keep trudgin on from here with my life.

Anyway.....hugssssssssssssss. Have a great night all.

What doesn't kill us only makes us fight back harder! :P

Regular Member

Date Joined Feb 2009
Total Posts : 487
   Posted 6/8/2009 11:41 PM (GMT -6)   
Hi Scarred:
I am so sorry for the struggle you are having to endure to get the SCS approval from WC.  I firmly believe they do this crap 100% on purpose to try and get you to give up.  I have had a Medtronics SCS for about 10 years, and although I did not have the approval problems you are having (My private health ins. paid for it), I am one of the Murphy's Law type people, anything that can go wrong will, and despite on-going issues that I will not go into right now because the chance of them happening to you are so miniscual, and despite the fact that it only gives me 10 - 25% pain relief, I would do it again in a heartbeat.
I have had many people ask me why I just don't give it up and be done with it, but honestly, a lot of the time it is the difference between me being able to get through a bad pain day at home, or having to go to the ER, and to me, that is worth it.
I know that most people get much more relief from it than I do, and I truly pray that you are one of those people who get a terrific amount of pain relief.  I just wanted to let you know from someone whose got one that I feel it is worth the fight.
Hang in there,

Veteran Member

Date Joined Jul 2008
Total Posts : 2317
   Posted 6/9/2009 7:58 PM (GMT -6)   
I just feel so bad for you.

If I could offer another interpretation of PALady's comments (without assuming that my interpretation is necessarily what she actually meant:

When I got into my car accident, I couldn't sleep for 3 days. Every time I would close my eyes, I would see the smoke & steam from the radiator again. It was horrifying. I was so angry. More than anything, I was mad at God b/c I prayed & prayed for a bit of relief to be able to sleep. I even tried sleeping pills to no avail. Well, it forced me to go a different route b/c I was beside myself between the sleep, the anxiety & not being able to walk. As it turned out, it was a blessing in disguise. The ER had missed that I had a pretty bad concussion. The neurologist said he wasn't sure how they missed it, but that if I would have gone to sleep it was quite likely that I would never have woken up. So, sometimes what we are most angry about (& rightly so) and wishing more than anything would change, turns out to be for our benefit. I won't say that if I had it all to do over again that I wouldn't still be wishing for sleep & shaking my fists at God in rage, but looking back I realize that not sleeping for a few days was far preferable to the alternative.

Who knows what the reason is for you not getting your benefits? But one possibility is that there is some undiagnosed problem that only God knows about that would become dangerous or more painful or something if you were to get the SCS. Sure, there are other possibilities (maybe WC is just evil) but I think perhaps you are right to say that at some point you need, for your own mental health benefit, to accept what is & try to make the most of it. Who knows whether having to wait another year, or two years, or five years, might end up getting you a much safer, stronger, better SCS unit that is 1000x better than the ones we can get today. I know that the technology is evolving at lightening speed so maybe that is the silver lining.

As another option, I am wondering whether it would be possible for you to get into a trial group for one of the newer models. I'm not sure what's out there right now, but I know that there have been SCS trials done in Missouri in the past, so maybe it wouldn't be out of the question. Of course, WC would have to agree to still keep paying for your meds & doctor's visits, but maybe that is one way that you could get the implant without having to jump through so many hoops. Just a thought. I know trials sometimes get a bad wrap, but the SCS technology would not be completely new, it would just be an improvement on what already exists. It is not without risks, but there are definitely benefits to be had as well.

Anyways, I will keep praying for you to find treatment & relief through one way or another.

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