Your name keeps reminding me of the movie Mighty Ducks
! I loved that movie when I was little.
Okay, well, back to the point! I also want to welcome you to HW. I have read your post on my other thread, and I am so honored that you took the time to write to me, having just joined! I'll respond to you there at some point (hopefully tomorrow), but I'm not feeling very well at the moment (I woke up to a lovely stomach bug), so I'm just sticking to a few brief replies for today.
I'm sure that the others have already told you how wonderful HW truly is, and how it has been a Godsend for many of us - me included (I apologize for not having read the other posts).
I am very sorry to hear about
your endometriosis. What I know about
it, I have learned from others here (yes, you are not alone, we do have other members with endo) & it sounds horribly painful! I can relate to your resulting struggle through college. I am just a few years older than you - 21 yrs in fact - and have been dealing with CP since I was 18 yrs. So far, I've struggled through 5 out of my 6 semesters with CP. I won't go into all the details here, because it is a whole story in itself, but just know that you are not alone! If you ever want to talk about
it, I'm more than willing & can give you my e-mail at any time.
So, I wish to extend to you a warm welcome to the Chronic Pain board at Healing Well! I think I can speak for all of us when I say that we are most happy that you have found us!
Oh, I forgot to mention that my form of CP is severe retro-bulbar eye pain resulting from a pretty severe traumatic injury that I had to one of my eyes two and a half years ago. We still do not know exactly what is causing my current pain, as all of the damage resulting from the trauma was either surgically fixed, or has healed, yet the pain never disappeared, and in fact the function of my eye (which was also effected by the injury) has been getting progressively worse. We know some "pieces of the puzzle," just not how to fit them together. To date, my pain has been completely resistant to treatment. I've been through just about
every non-narcotic pain medication, anti-inflammatory, & nerve block/injection, as well as many opioid pain medications with no results (although this is supposedly very typical of the type of pain/condition that I have). Right now, we are still experimenting with fentanyl patches, which are our last hope in terms of conventional opioids. So far I've not had any luck, but my doc isn't quite ready to give up. After the patch is exhausted, then we have to think about
turning to more radical measures. However, I'm pretty terrified by what may be to come, so I'm pursuing just about
every form of alternative medicine/treatment that I can think of, that I have not tried in the past. Right now I'm working with a homeopath MD, a DO who practices craniosacral therapy, an acupuncturist (who I've been working with for the past year), and a practitioner of Chinese medicine. I'm hoping that one, or a combination of these therapies will provide me with some kind of relief.
And one other thing. I just went back to your post & saw that you mentioned insomnia. Sleep difficulties (as well as depression) are very very common side effects of CP. I suffer from both of them, and unfortunately, yet again, we have yet to find a medication or other form of treatment which helps me with either of these. I usually get about
3 - 5 hrs of sleep a night because of pain. On really bad days, I don't sleep at all. If you stick around, you'll most certainly hear about
this from other people as well. It's a vicious cycle! And I also noticed that you mentioned about
how you get pre-occupied with the next week, next semester, next year etc. My piece of advice is to slow down! If you look to far ahead (as with anything, but esp CP) you are going to find it overwhelming. I used to always think ahead as well - at the very least I'd think & plan ahead for the next day & the remainder of the week. I've found that now, with my CP, I can literally only think ahead to the next hour, at most! Otherwise I get too overwhelmed and stressed out & then that only makes my CP worse! So try to take it easy & not get too far ahead of yourself!
Post Edited (skeye) : 6/10/2009 6:41:33 PM (GMT-6)