Just to let you know that the people with baclofen only in their pump seem to be generally the most happy. Also it seems if you have only baclofen and the new 40ml pump you can go longer between refills. I only need a refill every six months.
The other thing I have learnt from the others in pumpsters that different countries seem to things differently. In the US, & I think Canada, the drs put the pump in empty (day surgery) and only fill it later with a minimum dose and sometimes it takes a while to titrate the dose to the best one for you especially if you have a cocktail of drugs in it. In Australia we go into hospital for 3+ days and the pump is full when they put in. I actually reduced the dose twice because although it took away the pain my MS makes me weak and the baclofen made me weaker. I am now on a complex continuous dose where I get the minimum in the day and more at night when the spasticity/pain is worst.
When you have the op the pump sticks out and it is a good idea to ask for and wear a binder which holds it firmly until it gets "sucked in". After a few months it is invisible - the outline can only be seen under the skin if you wear a bikini! If you are unlucky enough to get a spinal headache ask for a blood patch apparently it fixes it really well otherwise the headache can last for weeks. I never had a headache and managed without a binder but think I will have a binder next time. Ask where they are going to put the pump. Here they always put them to the left of the bell button & the top of the pump is in line with the belly button. I am very small but have had no problems but some people complain of it bumping against their hip bone or ribs.
I love my pump and am sure you will have happy pumping
Have had relapsing/remitting MS since 10 yrs old. Secondary/progressive since 1995. Baclofen pump since 2008.
Plant your own garden & decorate your own soul instead of waiting for someone to bring you flowers.
Know that you are strong, worthy and can learn & endure.