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Veteran Member

Date Joined Jul 2008
Total Posts : 1560
   Posted 6/26/2009 3:12 AM (GMT -6)   
Hey everyone.  It has been awhile since I have checked in with all my CP friends and I thought I would give ya'll an update to what has been going on with me.  Bear with me my friends, I am sooooo tired and my breakthrough Medications are just now kickin in.
Okay so, I have seen my psychologist twice now and I really think it is beginning to help out tremendously!  He is very personable and listens to everything I say.  Refreshing to say the least, I have alot on my mind and he is very good at telling me the truth.
This drug addiction situation.....(the fact that my doctor is soo worried about past drug problems catching up with me) is really worrysome and I really do not believe that it is a problem.  I haven't done anything, as far as early refills, running out of medications or anything like that to prompt this.  It's only because three psychologists (with the aide of their 80% correct testing) that I'm even in this situation.
Now, I am tagged to be IA'd every 2 months which is putting more stress on me as I keep thinking that I am now red flagged as a possible problem patient.  My illegal drug use is so far in the past that I don't even think about it anymore.  Its a part of my past that I would never ever go back to and I just don't see where it influences my taking my medications.  But.....the trials go on.
Now on the topic of the SCS......Yes it is still in my future plans to go ahead with this procedure.  But....again I have to jump through tons of hoops, which don't get me wrong I do not mind doing but with WC not paying for the psych part of the bills, its taxing our money flow and I am afraid that I will not be able to continue this treatment that seems to be helping me lower my pain for much longer.  As it is I only see my psychologist every two weeks and still that posses a problem as I have to drive myself to Wichita and then am crying and hurting so badly by the time I leave the city trying to drive home. on a brighter note!  My pain is decreasing bit by bit....because of my new distraction tool!!!!  Hubby, as wonderful as he is, bought me a Wii and a cool game!  This has allowed me to get a bit more challanging excersise and that has seemed to lower my pain a bit more.  I am now down to a 7-8 instead of raging at 10-9!  My psychologist says that it is a good thing and that I am to continue to do what I can to lower my pain.
We have set a few new goals and I really think that I can do them without comprimising my pain.  Anyway....that is what is going on with me.  Time for some sleep. 
I think of you all often and I hope that your pain is lowered.
P.S.  PA???  Have you been watching Moonlight???  What do you think?
What doesn't kill us only makes us fight back harder! :P

Forum Moderator

Date Joined Feb 2003
Total Posts : 16578
   Posted 6/26/2009 3:37 AM (GMT -6)   

Hi Scarred,

I am so happy to hear things are working out with your psychologist. You are right, it has to make you feel better just to be able to sit down and talk to an unbiased person and get out some of this frustration you have gone thru with the WC people. That added stress alone is enough to put anyone over the moon. I had an awesome psychologist that I saw. If my ins would pay for it now, don't think for a moment I would not be in her office. She helped me so much. Unfortunately, when my husband retired our ins changed over to a retiree's plan and I guess they figured we didn't need that coverage any longer, along with vision and dental. I guess when people retire from that company they figure you don't need someone to talk to, or need to see or have any teeth in your mouth lol.

Thats awesome about the WI. My daughter has one of those and my grandson plays on it every time they go over there. He plays golf and some other game on it. I did not know they had an exercise program too, wow.

May I ask how your psychologist is reacting to the crap about the addiction situation that obviously has not been in the picture since Hitler was a road guard. You are what pain drs call the perfect pain patient because you do as directed by your dr end of story. If you don't want to answer the question no problem. I just hope this guy see's it as we do, that was a long, long time ago end of story.

Take care and please don't be a stranger. Hey, are you painting any? How do you like Kansas? My Mom lived in Garden City you know and loved it there. I lived in a crack in the road called Satanna back in the early 70's. Its plenty hot in Texas triple digits.

Moderator Chronic Pain
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.

Veteran Member

Date Joined Jul 2008
Total Posts : 1560
   Posted 6/26/2009 4:01 PM (GMT -6)   
Hey Susie Nice to hear from you!!! I think you are right on all accounts here. Everything that I seem to want to talk to hubby about I can't so the psychologist is my outlet for many things that hubby does not understand.

Doc put me on a new nerve pain pill its called Trileptal. For the first week I am to take it only at bedtime, then the second and subsequential time following that two a day. We shall see if that brings down my pain level. I really liked the Topamax....but I started sleepwalking and that just was not going to fly with me. So doc decided that maybe a nerve pain pill might help lower my pain level and put me on the new stuff. I sure hope it works.

As for painting.....I have started a canvas but since I have been in so much pain its been hard to concentrate on the colors. But, I am hoping to get back to it soon. Kansas is hot right now....96 degrees and 75% humidity makes for a rotten day! I hate the weather here but for the most part I love it. Hubby says I'll get used to the heat...but I don't think I ever will, since I have another problem where I don't produce the sweat that most people do and it can cause me to heatstroke. Not good!!!

Oh hey how is things there?? Everything okay? I sure hope your pain is at low levels hun! Hugssssss


What doesn't kill us only makes us fight back harder! :P

Veteran Member

Date Joined Mar 2008
Total Posts : 3089
   Posted 6/26/2009 8:55 PM (GMT -6)   
Hi Scarred!

Good to hear from you! I'm glad that things seem to be going well with your psychologist & appear to be helping! You should sure get some credit for being open & willing about this!

That is also FANTASTIC news that your pain seems to be a little better. 7-8 is certainly not fun -- that's what I generally live with each day -- but it is certainly much better than 9-10! Keep playing that Wii, and maybe you'll build up some more muscle strength which will help counteract some of your problems! Here's to hoping anyway! Keep us posted!


Veteran Member

Date Joined Nov 2007
Total Posts : 6795
   Posted 6/27/2009 12:44 AM (GMT -6)   
It is so good to hear from you. I've been kind of struggling these days, so don't have a lot of energy for a long response. I'm glad at least some things are proving helpful!

Moonlight is now into reruns here. Do you have new episodes there?

True Blood has started it's second season, but I don't get HBO anymore!


Veteran Member

Date Joined Dec 2008
Total Posts : 773
   Posted 6/27/2009 10:11 AM (GMT -6)   


It so good to hear that you are doing better and your pain level is lower!  My husband got me a Wii for Christmas and my daughters got me the Wii Fit program, it is amazing and has helped me as well.  We also got Mario Karts which is supposed to be a kids game but my husband and I have become quite competative and giggle alot racing.  I tell everyone its put the fun back in our marriage!

Keep us posted!



Veteran Member

Date Joined Mar 2009
Total Posts : 1158
   Posted 6/27/2009 5:52 PM (GMT -6)   
I'm so happy your pain level is on the down swing!!!

edt I want a wii also but so far no one has bought me one.....

39 yr young female with,
Chronic Kidney Stones, PKD (Polycystic Kidney Disease), Chronic Kidney Failure, Severe Hypertension, Urological RSD
Also CHF (Congestive Heart Failure) and Sleep Apnea
Hopefully NO MORE........ I think I have it all

Veteran Member

Date Joined Jul 2008
Total Posts : 1560
   Posted 6/27/2009 6:00 PM (GMT -6)   
PA: Nope hun reruns here too on Moonlight! I'm beginning to think that its not going to have a full show of new episodes. :-( I am so sorry that your down PA....I wish I could take your pain away. Hugsssss hun.

Susie; I really think that all of this is beginning to set in. I should get credit for doing all of the things that my doctor is asking of me and I am hoping that he will go to bat for me when it comes time to put in the SCS next year. Basically what I was told was that they are trying to give me the best possible chance for a good outcome with the SCS and that all of this is pretty standard. Now if I have to pee in a cup again next visit I think I am going to have a long talk with my doc about it for sure.

Patti; I absolutely LOVE my Wii!! It has to be the best thing hubby bought me so far. It has given me the energy to do things throughout the day and I look forward to my day now. So I guess you could say that the Wii has pretty much changed my outlook on a few things. I think the better I get at using the controllers is going to give me more confidence to do other things as well.

Hey I actually got out today and went yard saling!!! Bought some awesome goodies too!


What doesn't kill us only makes us fight back harder! :P

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