FJ thats awesome you got to meet Patti. A few years back several of the people on the crohns forum came up with a central like meeting place and a bunch of them got together at one hotel for 4-5 days and had the very best time getting to know each other. Sadly, I was really sick with my crohns and could not make the trip and sure wished I had been able to. The hotel being told the story of this get together blocked off several rooms at a discounted rate, someone made a sizable donation never knew who and the money went towards the food bill at the hotel's restaurant. They had a wonderful time. Wouldn't it be neat if we could come up with a plan like that?
Moderator Chronic Pain
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Swveral other health issues just not enough roo to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.