I am so sorry you are going through this nightmare. I wish I could just shake my head and say "I just can't believe this"........but as the owner of both a Advanced Bionic Stimulator and a Medtronic Intrathercal Pump I can say with experience bad things happen to good patients. There are a lot of top tier Pain Medication doctors out there that are more worried about what they are going to have for lunch, their golf game, or God only knows what - except their patients. My first two doctors were horrific - they talked a good line, answered all of my questions with appeared to be well documents information. However, when it came to the actually surgery, patient care, and follow-up they were either MIA or the answers and solutions were so full of crap I am lucky they did not kill me. The trick is surviving this calamity and locating a caring and well trained PM that is WILLING to accept you as a patient. Does the Oregon WC Bureau have a list of approved SCS doctors? Could your PCP refer you to someone on the list? When I went in search of a new doctor, I called my Advanced Bionic Representative. Since many of the reps actually scrub for surgery, they have a fairly good idea which doctors are committed to practicing good medicine. I also contacted the Ombudsman for the hospital in which I had the first surgery. They helped me identify qualified pump doctors in the immediate area. By working with the pump manufacturers rep and ombudsman it was able to locate a fantastic PM doctor of loads of pump experience. I have to honest, switching PM pump doctors can be very hard. Many doctors refuse to accept pump patients where a different doctor implanted the pump. My new doctor is a miracle worker. He has combinations of medication that the old one never thought about. I can always get in the office within 24hrs. if there is a problem. So they are not all incompetent - but there is a great deal of money to be made implanting there devices - implanting is just the start of a long relationship.
One thing someone did remind me of was that PM is a rapidly changing field. The majority are anesthesiologists, but not all of then have completed the advanced training necessary to manage the newer surgical interventions. Some PM's are doing their own surgery will little or no surgical training. Good luck and my prays are with you.
Co-Forum Moderator for Chronic Pain
Rare neurodegenerative /movement disorder called “Multiple System Atrophy”. Mobility issues,, neuropathic pain, spasticity, central apnea, collagenous colitis, pain, swallowing and respitory involvement, Implants: intrathecal pump & neurostimulator. Extra features: O2 & wheelchair
Post Edited (Stella Marie) : 7/8/2009 3:11:33 PM (GMT-6)