I read what Smoochie posted and that group is online I believe, maybe look at their site and see what is on there. Another group is Pumpsters. There is a guy there that keeps a list of "good drs" that he has compiled for years from pump people that had good pump drs. I will need your city & state and would be more than glad to contact him to see if there is by chance a dr somewhere close to you. Gawd, I wish you lived where I do or even close to where I live.
I also saw a post from Stella Marie where she contacted Medtronic directly and was able to find a new pump dr thru them. She too found she was hitting a brick wall because of no dr wanting to take on an existing pump patient. Have you ever contacted Medtronic directly about a new dr? I think if you explained your situation to someone there you may be able to get some help. Its sure worth a call.
I know travel is difficult for you, but it does look like you will have to do some driving. But if you can find a decent dr it will be worth it.
My story & yours is alike in some ways-we both liked our drs and thought we would be taken care of, little did we know. We both were refused increases in our pumps. I can still hear his words echo in my head, "but you are on the strongest medication there is." One part of that statement was true-but I was also on the lowest dose dang near too. He failed to throw that in the mix.
I need to ask you something and see what your thoughts are or even if you have entertained the thoughts at all. Considering where your pain level stays at now, do you think your pain level would improve if you did not have the pump and was back on orals meds only? How aggressive would your dr be with orals meds at this point? Just thougts hitting this tired brain,lol.
I did have a bit of a surprise on my birthday. I had received cards from my sisters and a friend. Also, saw another card in the stack of mail and opened it, a birthday card from my drs office and each of the girls signed it including the dr, such a surprise, but a nice one for sure.
Somehow there just has to be a way to get you the help you need. We can't give up on that idea at all.
Moderator Chronic Pain
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Swveral other health issues just not enough roo to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.