I am wondering if anyone on here has been diagnosed with this? The neurobloke says it's an offshoot of either RA or AS and presents as severe bouts of pain at base of skull and in guider areas of neck following through to the shoulder blade? I go for cortico-steroid injections about
once every three months or when it's unbarable. The neuro fellow says in his experience pain killers don't work. Has anybody else gt this? I promise you it's a pain in the neck!