Welcome back gal. I am so glad that you remembered us and decided to come back. Its the same place with lots of new people which you will get to know.
Yes, I do rememer when you did the trial for the pump and got sick with menigitis. OMG how awful. I totally understand your fear and it is very much warranted. You poor thing, of all goffy things to happen during a trial, wow.
Well, I have my pump, you mostly likely did not remember that. Let me tell you, my former PM dr went back into anesthesiology and gave up PM. Boy, was that a blessing in disguise. I really liked him too and was so upset & sad when he told me he was closing down. What he did do was refer his 45 pump patients to a retired neurosurgeon here in my town. OMG, she is totally awesome. I started seeing her Jan of this year. She has over a decade of experience in pumps, knows compounds does her own mixing of medications for the pumps. She handles pump patients only. She has my pain under the best control ever!! I cannot say enough good things about my dr. One thing I will tell you up front. If you decide to have the pump put in, please know this. If for some reason you decide you want to change drs, let me tell you finding a new dr to take you on is very difficult. I assumed one of the others drs in the clinic would take on my care and asked my dr this, he said no they would not take me on. I asked why, he said other drs do not like taking on an existing pump patients. I did not know this and was not told this before surgery either. Knowing this thank goodness he found another dr to take us pump patients over. I know people on the Pumpsters site are having a difficult time trying to find new pump drs. I wanted to let you know about this. If you have any questions you want to hear from an existing pump patient, I will answer if possible.\
So good to have you back.
Moderator Chronic Pain
crohns disease dx 2002 & small bowel resection, still looking for remission whatever that is, chronic pain 22 yrs, added ulcerative colitis 6-05 to the mix, high blood pressure 28 yrs, aortic heart valve insuffiency, depression, osteoarthritis, osteoporosis lumbar spine, scoliosis lumbar spine, peripheral neuropathy hands & feet, COPD & on oxygen therapy, lupus & decreased circulation in both legs. Several other health issues just not enough room to list it all. Too many surgeries to list and too many medications to list. Currently on 16 different daily medications. Intrathecal pain pump implanted June 05.