Welcome to HealingWell CP forum, first off to answer your question about knowing any Doctors in your area, I am afraid I can't help you with that, have you tried Googling for it,? I have found that you can find just about anything if you try Google, so that might be worth while trying. Anyway I am sure somebody will come along and have some suggestions for you! I did want to weldome you to this forum, if your having pain this is the place to be! I really think you will find some of the best and most compassionate and caring people right here at this forum that you will find any where!
Sorry you have pain and about your condition, I have read about it before but that is all! It is really rare! But I am glad you have found us! I do hope you will stick around and join our group!
Again Welcome Andrea
Moderator Chronic Pain
I'm Retired USAF, went back to school and became an RN, and now am on full disalbility!--Degenerative Disc (affecting mostly the thorasic disc but all levels involved), C6/7 laminectomy/diskectomy& fusion, Osteoarthritis, Ulcerative colitis, Chronic Pain, Fibromyalgia, Complex Sleep Apnea, and host of other things to spice up my life!(NOT!) Medications: Oxycontin, Percocet, Baclofen, Sulfasalazine, Metoprolol, Folic Acid, Supplemental O2 at 3lpm with VPAP Adapt SV