Good luck with your pain clinic appointment. I do hope you can get him to understand your situation. I am so sorry to hear of your daughter's congenital Lyme. I hope she receives very successful treatment. Best of luck to you both.
I don't have any advice to offer. I have MRIs and such that show lesions, a herniated disc and whatever that gets me the medical support I need to treat pain. Whatever tests you can bring would still be helpful. Can you bring those and the articles saying that the CDC will changing its view and treatments on lyme?